Advocacy Day In Sacramento
On May 5, 2025, CFRI advocates will be in Sacramento raising awareness among our elected representatives about issues that affect individuals and families living with CF and rare diseases. Between 8:30 am and 4:00 pm (approximately) we will meet with Assemblymembers and Senators (and/or their aides) to raise CF awareness and ask for their support on specific legislation that impacts the lives of our community members. A resolution by Senator John Laird, declaring May to be Cystic Fibrosis Month in California will also be read.
If you are ready to confirm your participation in this empowering day of advocacy, please email cfri@cfri.org. Please also confirm your residential address, so that we can set up meetings with your representatives.
Purple Power CF Awareness Challenge
Take the Purple Power Challenge with CFRI this May and help us turn social media purple! Here are some ideas to get you started:
- Rock your favorite purple outfit or accessory
- Show off your purple hair, makeup, nails or beard
- Share your favorite purple foods, drinks or recipes
- Post your best purple-themed photos and videos
- Get your pets in on the fun with purple gear
Taken your photo or video? Just post to social media, tag CFRI and challenge your friends to donate and join in (or both)!
When you raise $100, you’ll receive an exclusive CF Awareness T-shirt to show your support all year.
Click the button below to learn more and donate to support CFRI’s Patrick Nash Fellows Training Program.
Sponsored by Vertex Pharmaceuticals and Viatris.
Social Media Toolkit
Help amplify the message this May! Our CF Awareness Month Social Media Toolkit provides a collection of resources to help you share, post and spread awareness easily all month long.
