Advocacy Day In Sacramento
On May 5, 2025, CFRI advocates traveled to Sacramento in honor of Cystic Fibrosis Awareness Month (SCR 51), introduced by Senator John Laird. The day included meetings with 22 legislative offices—both state senators and assembly members—where advocates shared personal stories to raise awareness of CF. Discussions also covered key legislation, including bills to regulate pharmacy benefit managers (SB 41, AB 577), expand MediGap access (SB 242), extend prior authorization periods (AB 539), and improve coverage for colorectal cancer screening (AB 539), among others. It was an inspiring and uplifting day for all involved.
Purple Power CF Awareness Challenge
Take the Purple Power Challenge with CFRI this May and help us turn social media purple! Here are some ideas to get you started:
- Rock your favorite purple outfit or accessory
- Show off your purple hair, makeup, nails or beard
- Share your favorite purple foods, drinks or recipes
- Post your best purple-themed photos and videos
- Get your pets in on the fun with purple gear
Taken your photo or video? Just post to social media, tag CFRI and challenge your friends to donate and join in (or both)!
When you raise $100, you’ll receive an exclusive CF Awareness T-shirt to show your support all year.
Click the button below to learn more and donate to support CFRI’s Patrick Nash Fellows Training Program.
Sponsored by Vertex Pharmaceuticals and Viatris.
Social Media Toolkit
Help amplify the message this May! Our CF Awareness Month Social Media Toolkit provides a collection of resources to help you share, post and spread awareness easily all month long.
