Events

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July 2021

34th National CF Education Conference: Illuminating the CF Journey

Friday, July 30 – Sunday, August 1, 2021

CFRI’s 34th National CF Education Conference, Illuminating the CF Journey, will take place in an engaging virtual format, with renowned speakers addressing phage, mRNA and gene therapies, mental health, exacerbations, and much more. Hear from the author of Breath from Salt, and those featured in the book.

The event includes support groups and activities to connect with your CF community across the country and globe.

Registration is free!

Click here for more information and a list of confirmed speakers. Click here to register now.

Sponsored by Vertex Pharmaceuticals, Genentech, Gilead Sciences, Chiesi USA, AbbVie, and Ionis Pharmaceuticals.

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August 2021

Navigating Grief to Growth – Bereavement Support Group

Tuesday, August 3, 2021, 5:00 pm – 6:30 pm PT

A discussion and support group for those who have lost a loved one to CF, whether recently or in the past. Led by Isabel Stenzel Byrnes, LCSW, MPH, a grief counselor who also lives with CF, the group will provide a safe place to engage in focused practices to help experience growth in coping with the loss of a loved one. Each meeting will have a different topic but there will also be time for open discussion. Adults and mature teens over age 16 are welcome.

To participate, please send an email to CFRI to request the registration link. You only need to register once to attend any of the meetings, which will run through December 2021. Please allow 3-4 hours before the meeting to register.

Sponsored by Chiesi USA, Genentech, Ionis, Viatris, Translate Bio, Gilead Sciences, and private donors.

Fitness Education Seminar – Part 2: Resistance Training

Thursday, August 5, 2021, 3:30 pm – 4:30 pm PT

This five-part series with Taylor Lewis, MA, CSCS, addresses the varied components of physical exercise and how to achieve optimal results. This second online seminar will show you various approaches to advance your resistance training to build muscular strength and endurance. Participants will also receive access to an online 4-week self-paced training program, with a mid-month drop-in session.

REGISTER NOW 

Sponsored by Vertex Pharmaceuticals, Translate Bio, Ionis Pharmaceuticals, Viatris, and private donors.

Support Group to Cope with COVID-19 Stress

Thursday, August 12, 2021, 5:00 pm PT

Coronavirus and Risk ReductionOn the first Thursday of every month, CFRI hosts an online discussion/support group for CF community members to talk about COVID-19 related stress and anxiety, moderated by Yelizaveta Sher, MD, psychiatrist at Stanford’s Adult CF Center.

To participate, please send an email to CFRI to request the registration link. Please allow 3-4 hours before the meeting to register.

 

Online Support Group for Adults with CF

Monday, August 16, 2021

CFRI provides a monthly Online Support Group for Adults with CF, which is open to participants nationwide. The group is facilitated by a social worker well versed in issues facing adults with CF.

The group meets on the third Monday of every month, from 6:00 pm PST to 7:30 pm (9:00 pm – 10:30 pm EST).

To participate, please send an email to CFRI to request the registration link. Please allow 3-4 hours before the meeting to register.

Facilitated by Meg Dvorak, LCSW, or Kate Yablonsky, LCSW, CF Social Workers at Stanford.

Support Groups are sponsored by Chiesi USA, Genentech, Ionis, Viatris, Translate Bio, Gilead Sciences, and private donors.

CF Caregivers Support Groups

Tuesday, August 17, 2021

CFRI provides a monthly CF Caregivers Support Group, which is open to participants nationwide. The groups are facilitated by a social worker well versed in issues facing CF caregivers. Participants are able to participate in person, as well as join anywhere from the country by telephone.

Two groups to choose from:

  • Parents of children with CF:
    5:00 pm – 6:00 pm PST
  • Parents/Spouses/Partners of Adults with CF:
    6:00 pm – 7:00 pm PST

To participate, please send an email to CFRI to request the registration link. Please allow 3-4 hours before the meeting to register.

Facilitated by Meg Dvorak, LCSW, or Kate Yablonsky, LCSW, CF Social Workers at Stanford

Caregivers Support Groups are sponsored by Chiesi USA, Genentech, Ionis, Viatris, Translate Bio, Gilead Sciences, and private donors.

Navigating Grief to Growth – Bereavement Support Group

Tuesday, August 17, 2021, 5:00 pm – 6:30 pm PT

A discussion and support group for those who have lost a loved one to CF, whether recently or in the past. Led by Isabel Stenzel Byrnes, LCSW, MPH, a grief counselor who also lives with CF, the group will provide a safe place to engage in focused practices to help experience growth in coping with the loss of a loved one. Each meeting will have a different topic but there will also be time for open discussion. Adults and mature teens over age 16 are welcome.

To participate, please send an email to CFRI to request the registration link. You only need to register once to attend any of the meetings, which will run through December 2021. Please allow 3-4 hours before the meeting to register.

Sponsored by Chiesi USA, Genentech, Ionis, Viatris, Translate Bio, Gilead Sciences, and private donors.

Virtual CF Summer Retreat

Thursday, August 19 – Sunday, August 22, 2021

CFRI’s annual CF Summer Retreat will take place from Thursday, August 19, to Sunday, August 22, 2021. The Retreat was created to enhance education, positive coping skills, and social support for people who share common experiences with CF. Due to the pandemic, the retreat will be fully virtual, and will include educational presentations by CF experts and special guests, as well as daily exercise, arts and crafts, support group sessions, and more. Registration is required. Before the event, we will send you a link to join, a detailed schedule, and a welcome care package.

Click here to register.

Sponsored by AbbVie, Vertex Pharmaceuticals, and Gilead Sciences.

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September 2021

Support Group to Cope with COVID-19 Stress

Thursday, September 2, 2021, 5:00 pm PT

Coronavirus and Risk ReductionOn the first Thursday of every month, CFRI hosts an online discussion/support group for CF community members to talk about COVID-19 related stress and anxiety, moderated by Yelizaveta Sher, MD, psychiatrist at Stanford’s Adult CF Center.

To participate, please send an email to CFRI to request the registration link. Please allow 3-4 hours before the meeting to register.

 

Navigating Grief to Growth – Bereavement Support Group

Tuesday, September 7, 2021, 5:00 pm – 6:30 pm PT

A discussion and support group for those who have lost a loved one to CF, whether recently or in the past. Led by Isabel Stenzel Byrnes, LCSW, MPH, a grief counselor who also lives with CF, the group will provide a safe place to engage in focused practices to help experience growth in coping with the loss of a loved one. Each meeting will have a different topic but there will also be time for open discussion. Adults and mature teens over age 16 are welcome.

To participate, please send an email to CFRI to request the registration link. You only need to register once to attend any of the meetings, which will run through December 2021. Please allow 3-4 hours before the meeting to register.

Sponsored by Chiesi USA, Genentech, Ionis, Viatris, Translate Bio, Gilead Sciences, and private donors.

Online Support Group for Adults with CF

Monday, September 20, 2021

CFRI provides a monthly Online Support Group for Adults with CF, which is open to participants nationwide. The group is facilitated by a social worker well versed in issues facing adults with CF.

The group meets on the third Monday of every month, from 6:00 pm PST to 7:30 pm (9:00 pm – 10:30 pm EST).

To participate, please send an email to CFRI to request the registration link. Please allow 3-4 hours before the meeting to register.

Facilitated by Meg Dvorak, LCSW, or Kate Yablonsky, LCSW, CF Social Workers at Stanford.

Support Groups are sponsored by Chiesi USA, Genentech, Ionis, Viatris, Translate Bio, Gilead Sciences, and private donors.

CF Caregivers Support Groups

Tuesday, September 21, 2021

CFRI provides a monthly CF Caregivers Support Group, which is open to participants nationwide. The groups are facilitated by a social worker well versed in issues facing CF caregivers. Participants are able to participate in person, as well as join anywhere from the country by telephone.

Two groups to choose from:

  • Parents of children with CF:
    5:00 pm – 6:00 pm PST
  • Parents/Spouses/Partners of Adults with CF:
    6:00 pm – 7:00 pm PST

To participate, please send an email to CFRI to request the registration link. Please allow 3-4 hours before the meeting to register.

Facilitated by Meg Dvorak, LCSW, or Kate Yablonsky, LCSW, CF Social Workers at Stanford

Caregivers Support Groups are sponsored by Chiesi USA, Genentech, Ionis, Viatris, Translate Bio, Gilead Sciences, and private donors.

Navigating Grief to Growth – Bereavement Support Group

Tuesday, September 21, 2021, 5:00 pm – 6:30 pm PT

A discussion and support group for those who have lost a loved one to CF, whether recently or in the past. Led by Isabel Stenzel Byrnes, LCSW, MPH, a grief counselor who also lives with CF, the group will provide a safe place to engage in focused practices to help experience growth in coping with the loss of a loved one. Each meeting will have a different topic but there will also be time for open discussion. Adults and mature teens over age 16 are welcome.

To participate, please send an email to CFRI to request the registration link. You only need to register once to attend any of the meetings, which will run through December 2021. Please allow 3-4 hours before the meeting to register.

Sponsored by Chiesi USA, Genentech, Ionis, Viatris, Translate Bio, Gilead Sciences, and private donors.

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For information or to register for these events, please email cfri@cfri.org or call 650.665.7576.