Events

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October 2021

Mindfulness 2.0

Starting Tuesday, October 26, 2021, 4:15 pm – 5:30 pm PT

Mindfulness 2.0 shares a new approach to bringing mindfulness into your daily life. This six-week online class is taught by Julie Desch, MD, who herself has CF. The course adapts Unified Mindfulness for the CF community. Classes will be held on Tuesdays, from 4:15 pm to 5:30 pm PT (7:15 pm – 8:30 pm ET). The class is free and open to individuals with CF and their family members (spouses/partners, parents, siblings). You must register in order to participate, and complete a pre-and post-class questionnaire. All registrants must be at least 16 years old.

For more information or to register, click here.

Sponsored by Chiesi USA, Genentech, Ionis, Viatris, Translate Bio, Gilead Sciences, Vertex Pharmaceuticals, and private donors.

New Program: Transplant Support Group

Wednesday, October 27, 2021, 5:00 pm PT

CFRI is launching a new monthly support group for CF Adults who are post-transplant. The group will begin on Wednesday, October 27 at 5:00 pm PT, and will address the unique issues faced by those with CF who have received a double lung transplant. The group will be facilitated by Sonya Haggett, LCSW, a licensed clinical social worker who has CF and is a double lung transplant recipient.

To register, click here. You will only have to register once to attend any meeting.

Generously funded through a family bequest.

Physical Therapy Series Part 3: Posture – Practical Tips and Tricks

Saturday, October 30, 2021, 9:00 am – 10:00 am PT

This five-part webinar series, presented by Nicole Irizarry, DPT, will address a specific topic each session, with demonstrations of techniques to address back pain, pelvic floor weakness, stretching, and more. The October 30 session takes place from 9:00 am PT to 10:00 am PT, and will address “Posture – Practical Tips and Tricks.” After registering, participants will receive a list of items that might enhance the live classes, such as a yoga mat, foam roller, and/or pillow.

Click here to register!

Sponsored by Translate Bio, Viatris, Ionis Pharmaceuticals, Vertex Pharmaceuticals, and private donors.

Infinity sign in purple with lines to separate sections

November 2021

Navigating Grief to Growth – Bereavement Support Group

Tuesday, November 2, 2021, 5:00 pm – 6:30 pm PT

A discussion and support group for those who have lost a loved one to CF, whether recently or in the past. Led by Isabel Stenzel Byrnes, LCSW, MPH, a grief counselor who also lives with CF, the group will provide a safe place to engage in focused practices to help experience growth in coping with the loss of a loved one. Each meeting will have a different topic but there will also be time for open discussion. Adults and mature teens over age 16 are welcome.

To participate, please send an email to CFRI to request the registration link. You only need to register once to attend any of the meetings, which will run through December 2021. Please allow 3-4 hours before the meeting to register.

Sponsored by Chiesi USA, Genentech, Ionis, Viatris, Translate Bio, Gilead Sciences, and private donors.

Fitness Education Series Part 5: Creating Your Own Exercise Program

Thursday, November 4, 2021, 3:30 pm PT

This five-part series with Taylor Lewis, MA, CSCS, addresses the varied components of physical exercise and how to achieve optimal results. You can attend one or all seminars. On Thursday, November 4, from 3:30 pm to 4:30 pm PT, Taylor will discuss the many variables that go into a personalized training program. This webinar will give you the tools to develop your tailored training program, which is especially important for members of the CF community. Participants receive access to an online 4-week self-paced training program, with a mid-month drop-in session.

Click here to register!

Sponsored by Ionis Pharmaceuticals, Translate Bio, Viatris, and Vertex Pharmaceuticals.

Support Group to Cope with COVID-19 Stress

Thursday, November 4, 2021, 5:00 pm PT

Coronavirus and Risk ReductionOn the first Thursday of every month, CFRI hosts an online discussion/support group for CF community members to talk about COVID-19 related stress and anxiety, moderated by Yelizaveta Sher, MD, psychiatrist at Stanford’s Adult CF Center.

To participate, please send an email to CFRI to request the registration link. Please allow 3-4 hours before the meeting to register.

Online Support Group for Adults with CF

Monday, November 15, 2021

CFRI provides a monthly Online Support Group for Adults with CF, which is open to participants nationwide. The group is facilitated by a social worker well versed in issues facing adults with CF.

The group meets on the third Monday of every month, from 6:00 pm PST to 7:30 pm (9:00 pm – 10:30 pm EST).

To participate, please send an email to CFRI to request the registration link. Please allow 3-4 hours before the meeting to register.

Facilitated by Meg Dvorak, LCSW, or Kate Yablonsky, LCSW, CF Social Workers at Stanford.

Support Groups are sponsored by Chiesi USA, Genentech, Ionis, Viatris, Translate Bio, Gilead Sciences, and private donors.

CF Caregivers Support Groups

Tuesday, November 16, 2021

CFRI provides a monthly CF Caregivers Support Group, which is open to participants nationwide. The groups are facilitated by a social worker well versed in issues facing CF caregivers. Participants are able to participate in person, as well as join anywhere from the country by telephone.

Two groups to choose from:

  • Parents of children with CF:
    5:00 pm – 6:00 pm PST
  • Parents/Spouses/Partners of Adults with CF:
    6:00 pm – 7:00 pm PST

To participate, please send an email to CFRI to request the registration link. Please allow 3-4 hours before the meeting to register.

Facilitated by Meg Dvorak, LCSW, or Kate Yablonsky, LCSW, CF Social Workers at Stanford

Caregivers Support Groups are sponsored by Chiesi USA, Genentech, Ionis, Viatris, Translate Bio, Gilead Sciences, and private donors.

Navigating Grief to Growth – Bereavement Support Group

Tuesday, November 16, 2021, 5:00 pm – 6:30 pm PT

A discussion and support group for those who have lost a loved one to CF, whether recently or in the past. Led by Isabel Stenzel Byrnes, LCSW, MPH, a grief counselor who also lives with CF, the group will provide a safe place to engage in focused practices to help experience growth in coping with the loss of a loved one. Each meeting will have a different topic but there will also be time for open discussion. Adults and mature teens over age 16 are welcome.

To participate, please send an email to CFRI to request the registration link. You only need to register once to attend any of the meetings, which will run through December 2021. Please allow 3-4 hours before the meeting to register.

Sponsored by Chiesi USA, Genentech, Ionis, Viatris, Translate Bio, Gilead Sciences, and private donors.

Physical Therapy Series Part 4: Important Exercises and Stretching

Saturday, November 20, 2021, 9:00 am – 10:00 am PT

This five-part webinar series, presented by Nicole Irizarry, DPT, will address a specific topic each session, with demonstrations of techniques to address back pain, pelvic floor weakness, stretching, and more. The November 20 session takes place from 9:00 am PT to 10:00 am PT, and will address “Important Exercises and Stretching.” After registering, participants will receive a list of items that might enhance the live classes, such as a yoga mat, foam roller, and/or pillow.

Registration coming soon!

Sponsored by Translate Bio, Viatris, Ionis Pharmaceuticals, Vertex Pharmaceuticals, and private donors.

Transplant Support Group

Wednesday, November 24, 2021, 5:00 pm PT

This support group addresses the unique issues faced by those with CF who have received a double lung transplant and is open to post-transplant CF adults only. The group will be facilitated by Sonya Haggett, LCSW, a licensed clinical social worker who has CF and is a double lung transplant recipient.

To register, click here. You will only have to register once to attend any meeting.

Generously funded through a family bequest.

Infinity sign in purple with lines to separate sections

December 2021

Support Group to Cope with COVID-19 Stress

Thursday, December 2, 2021, 5:00 pm PT

Coronavirus and Risk ReductionOn the first Thursday of every month, CFRI hosts an online discussion/support group for CF community members to talk about COVID-19 related stress and anxiety, moderated by Yelizaveta Sher, MD, psychiatrist at Stanford’s Adult CF Center.

To participate, please send an email to CFRI to request the registration link. Please allow 3-4 hours before the meeting to register.

Navigating Grief to Growth – Bereavement Support Group

Tuesday, December 7, 2021, 5:00 pm – 6:30 pm PT

A discussion and support group for those who have lost a loved one to CF, whether recently or in the past. Led by Isabel Stenzel Byrnes, LCSW, MPH, a grief counselor who also lives with CF, the group will provide a safe place to engage in focused practices to help experience growth in coping with the loss of a loved one. Each meeting will have a different topic but there will also be time for open discussion. Adults and mature teens over age 16 are welcome.

To participate, please send an email to CFRI to request the registration link. You only need to register once to attend any of the meetings, which will run through December 2021. Please allow 3-4 hours before the meeting to register.

Sponsored by Chiesi USA, Genentech, Ionis, Viatris, Translate Bio, Gilead Sciences, and private donors.

Physical Therapy Series Part 5: Physical Stress Management from a PT Perspective

Saturday, December 11, 2021, 9:00 am – 10:00 am PT

This five-part webinar series, presented by Nicole Irizarry, DPT, will address a specific topic each session, with demonstrations of techniques to address back pain, pelvic floor weakness, stretching, and more. The December 11 session takes place from 9:00 am PT to 10:00 am PT, and will address “Physical Stress Management from a PT Perspective.” After registering, participants will receive a list of items that might enhance the live classes, such as a yoga mat, foam roller, and/or pillow.

Registration coming soon!

Sponsored by Translate Bio, Viatris, Ionis Pharmaceuticals, Vertex Pharmaceuticals, and private donors.

Online Support Group for Adults with CF

Monday, December 20, 2021

CFRI provides a monthly Online Support Group for Adults with CF, which is open to participants nationwide. The group is facilitated by a social worker well versed in issues facing adults with CF.

The group meets on the third Monday of every month, from 6:00 pm PST to 7:30 pm (9:00 pm – 10:30 pm EST).

To participate, please send an email to CFRI to request the registration link. Please allow 3-4 hours before the meeting to register.

Facilitated by Meg Dvorak, LCSW, or Kate Yablonsky, LCSW, CF Social Workers at Stanford.

Support Groups are sponsored by Chiesi USA, Genentech, Ionis, Viatris, Translate Bio, Gilead Sciences, and private donors.

CF Caregivers Support Groups

Tuesday, December 21, 2021

CFRI provides a monthly CF Caregivers Support Group, which is open to participants nationwide. The groups are facilitated by a social worker well versed in issues facing CF caregivers. Participants are able to participate in person, as well as join anywhere from the country by telephone.

Two groups to choose from:

  • Parents of children with CF:
    5:00 pm – 6:00 pm PST
  • Parents/Spouses/Partners of Adults with CF:
    6:00 pm – 7:00 pm PST

To participate, please send an email to CFRI to request the registration link. Please allow 3-4 hours before the meeting to register.

Facilitated by Meg Dvorak, LCSW, or Kate Yablonsky, LCSW, CF Social Workers at Stanford

Caregivers Support Groups are sponsored by Chiesi USA, Genentech, Ionis, Viatris, Translate Bio, Gilead Sciences, and private donors.

Navigating Grief to Growth – Bereavement Support Group

Tuesday, December 21, 2021, 5:00 pm – 6:30 pm PT

A discussion and support group for those who have lost a loved one to CF, whether recently or in the past. Led by Isabel Stenzel Byrnes, LCSW, MPH, a grief counselor who also lives with CF, the group will provide a safe place to engage in focused practices to help experience growth in coping with the loss of a loved one. Each meeting will have a different topic but there will also be time for open discussion. Adults and mature teens over age 16 are welcome.

To participate, please send an email to CFRI to request the registration link. You only need to register once to attend any of the meetings, which will run through December 2021. Please allow 3-4 hours before the meeting to register.

Sponsored by Chiesi USA, Genentech, Ionis, Viatris, Translate Bio, Gilead Sciences, and private donors.

Transplant Support Group

Wednesday, December 22, 2021, 5:00 pm PT

This support group addresses the unique issues faced by those with CF who have received a double lung transplant and is open to post-transplant CF adults only. The group will be facilitated by Sonya Haggett, LCSW, a licensed clinical social worker who has CF and is a double lung transplant recipient.

To register, click here. You will only have to register once to attend any meeting.

Generously funded through a family bequest.

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For information or to register for these events, please email cfri@cfri.org or call 650.665.7576.