Cystic Fibrosis News

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Cystic fibrosis news shared on CFRI’s social media pages related to CF research, education, advocacy, patient wellness support and more!

JULY, 2021

MORNINGS ARE TOUGH WITH CF

THE WHO SAYS FULLY VACCINATED PEOPLE SHOULD CONTINUE TO WEAR FACE MASKS IN PUBLIC SETTINGS

LOW LEVELS OF VIP HORMONE MAY CONTRIBUTE TO EARLY CF-RELATED DIABETES

SEVERE COVID-19 MORE LIKELY IN CF CARRIERS THAN PATIENTS

JOINT DISEASE LINKED TO P. AERUGINOSA INFECTION, FEMALE SEX

SOME MINORS SEEK TO GET COVID-19 VACCINE AGAINST PARENTS’ WISHES

STUDY SUGGESTS MODERNA COVID-19 VACCINE EFFECTIVE AGAINST DELTA VARIANT

DELTA VARIANT IS MAKING OFFICIALS RETHINK MASK GUIDELINES

WHO ESTIMATES YEARLY COVID-19 BOOSTERS MAY BE NEEDED FOR MOST VULNERABLE

SUPREME COURT REJECTS LATEST CHALLENGE TO AFFORDABLE CARE ACT

TENSIN 1 GENE VARIANTS MAY AFFECT NUTRITION IN CF PATIENTS

ARROWHEAD PAUSES ARO-ENAC STUDY AMID SAFETY CONCERNS

11% OF PEOPLE IN THE U.S. HAVE MISSED THEIR SECOND COVID-19 VACCINE DOSE

US HEALTH OFFICIALS NOT YET RECOMMENDING THIRD DOSE OF COVID-19 VACCINE FOR PEOPLE WITH IMMUNE CONDITIONS

AIRWAY INFLAMMATION AFFECTS PH, RESPONSE TO CFTR THERAPIES

DATA FROM PHASE 2 TRIALS OF ELX-02 EXPECTED THIS YEAR

UNDERVACCINATED CLUSTERS MAY BECOME BREEDING GROUNDS FOR MORE FATAL CORONAVIRUS VARIANTS

PFIZER-BIONTECH TO SEEK FDA AUTHORIZATION FOR THIRD DOSE OF COVID-19 VACCINE

FDA CLEARS TACROLIMUS TO PREVENT LUNG TRANSPLANT REJECTION

HORMONE FLUCTUATIONS TIED TO CHANGES IN LUNG FUNCTION IN WOMEN WITH CYSTIC FIBROSIS

STUDY DESCRIBES NEW COMPOUND FOR NONSENSE MUTATIONS

FDA GRANTS PRIORITY REVIEW TO PFIZER-BIONTECH’S APPLICATION FOR FULL APPROVAL OF COVID-19 VACCINE

WILDFIRE SMOKE MAY INCREASE RISK OF COVID-19

JUNE, 2021

RACE, INCOME LIMIT CF LUNG TRANSPLANT ACCESS IN US MORE THAN CANADA

ELOXX ANNOUNCES FUNDING AWARD FROM CFF FOR DEVELOPMENT OF RIBOSOME MODULATING AGENTS (RMAs)

TRIKAFTA RECEIVES FDA APPROVAL FOR USE IN CHILDREN WITH CYSTIC FIBROSIS, AGE 6-11 WITH CERTAIN MUTATIONS

BENEFITS OF TRIPLE-COMBO TRIKAFTA FOR CF MOSTLY DUE TO ELEXACAFTOR

NEW CELL RESEARCH MODEL SHOWS PROMISE AGAINST P. AERUGINOSA

DR. FAUCI URGES VACCINATION AGAINST COVID-19 VARIANT SPREADING TO US FROM INDIA

UNITEDHEALTHCARE DELAYS PLANS TO DENY SOME EMERGENCY VISITS AMID OUTCRY

ANTIBODY-LADEN NASAL SPRAY COULD PROVIDE COVID PROTECTION

PHILIPS RECALLS MILLIONS OF VENTILATORS, SLEEP APNEA DEVICES OVER POTENTIAL HEALTH RISKS

RNA-BASED THERAPIES SHOW PROMISE IN EARLY STUDIES

MOLECULES IN PATIENTS’ BREATH MAY INDICATE P. AERUGINOSA INFECTION

STUDY SHOWS THAT COVID-19 BOOSTER SHOT MAY HELP PROTECT SOME TRANSPLANT PATIENTS

CASES OF COVID-19 DELTA VARIANT ARE RISING IN THE US

TRIAL RESULTS SHOW NOVAVAX COVID-19 VACCINE CANDIDATE 90.4% EFFECTIVE

VACCINATION RATES AMONG LATINX AND AFRICAN AMERICAN COMMUNITIES LAG BEHIND

MODERNA APPLIES FOR FDA AUTHORIZATION FOR USE OF ITS COVID-19 VACCINE IN ADOLESCENTS

U.S. TO BUY 500M DOSES OF PFIZER-BIONTECH VACCINE FOR OTHER COUNTRIES

HEALTH CANADA APPROVES TRIKAFTA FOR CF PATIENTS AGES 12 AND UP

NEW STRATEGY CORRECTS CF SPLICING DEFECTS IN LAB MODELS

YOUNGER ADULTS’ COVID-19 VACCINATION RATES SLOWER THAN OLDER ADULTS

MANY LOW-INCOME IMMIGRANTS RESORT TO UNPROVEN COVID-19 TREATMENTS

SUPREME COURT REJECTS LATEST CHALLENGE TO AFFORDABLE CARE ACT

DELTA COVID-19 VARIANT SPREADING IN UNVACCINATED US COUNTIES, ANALYSIS FINDS

MAY, 2021

NEW CRISPR TECHNOLOGY OFFERS CONTROL OF EPIGENETIC INHERITANCE

SOCIAL DISTANCING INSIDE CAN PROVIDE A FALSE SENSE OF SECURITY

MANY WHO TEST POSITIVE FOR COVID-19 BUT DO NOT REQUIRE HOSPITAL CARE SEEK MEDICAL CARE IN FOLLOWING MONTHS

KB407 GENE THERAPY FOUND SAFE IN ANIMALS, IN-HUMAN TRIAL EXPECTED LATER THIS YEAR

CDC SAYS FULLY VACCINATED AMERICANS CAN NOW GO OUTSIDE WITHOUT A MASK

CPAP THERAPY MAY AFFECT BMI IN ADULTS WITH OSA, STUDY INDICATES

MANY PEOPLE STILL PREFER CONVENIENCE OF JOHNSON AND JOHNSON ONE-DOSE COVID-19 VACCINE

FDA PROMISES TO ISSUE NEW RULES WITHIN A YEAR BANNING MENTHOL IN TOBACCO PRODUCTS

REACHING ‘HERD IMMUNITY’ IS UNLIKELY IN THE U.S

CHILDREN ACCOUNT FOR 22.4% OF NEW #COVID19 CASES IN THE US

WORLD ORPHAN DRUG CONGRESS: RARE DISEASE TRIALS AND PATIENT REGISTRIES

FDA TO AUTHORIZE PFIZER-BIONTECH COVID-19 VACCINE FOR CHILDREN AGES 12 – 15

PDE4 INHIBITORS MAY HELP TREAT CF, DRY MOUTH

EU OPENS KAFTRIO TO ALL CF PATIENTS 12 AND UP WITH F508DEL MUTATION

ELOXX ADDS KALYDECO TO ONGOING PHASE 2 TRIAL OF ELX-02

OP-ED: ANTIBIOTIC RESISTANCE, CHRONIC DISEASE AND COVID-19 – A TRIPLE THREAT

CDC UPDATES GUIDELINES ON CORONAVIRUS, EMPHASIZING AIRBORNE TRANSMISSION

TOBRAMYCIN GIVEN IN NANOPARTICLES SHOWS POTENTIAL TO TREAT P. AERUGINOSA

MS1819 PLUS PERT IMPROVES DIGESTION IN PEOPLE WITH SEVERE EPI

SPLISENSE RAISES $28.5 MILLION TO ADVANCE RESTORATIVE CF THERAPY

SURVEY FINDS THAT MANY UNVACCINATED LATINX ADULTS IN THE US WANT COVID-19 SHOT

ANTIBODY COCKTAIL REDUCES HOSPITALIZATION, DEATH AMONG HIGH-RISK, NON-HOSPITALIZED PATIENTS WITH COVID-19

CDC SAYS FULLY VACCINATED CAN GO WITHOUT MASKS OR PHYSICAL DISTANCING IN MOST CIRCUMSTANCES

CDC SAYS MOST PEOPLE WHO ARE FULLY VACCINATED AGAINST COVID-19 AND HAVE NO SYMPTOMS DO NOT NEED TO BE TESTED FOR THE VIRUS, EVEN IF EXPOSED

SPIROMETRY MEASUREMENTS TAKEN AT HOME DON’T MATCH WITH THOSE OBTAINED IN CLINIC

EU, UK CONSIDER EXPANDING KAFTRIO TO CHILDREN AGES 6 AND OLDER

TWO STUDIES INDICATE COVID-19 MITIGATION MEASURES CAN HELP SCHOOLS STAY OPEN AND KEEP STUDENTS SAFE

US CHILDREN WITH CF HAVE BETTER LUNG FUNCTION THAN UK CHILDREN

HEALTH DISPARITY OBVIOUS IN AVAILABLE TREATMENTS FOR SICKLE CELL COMMUNITY

APRIL, 2021

SWEAT-MEASURING STICKER MAY AID CF DIAGNOSIS IN CHILDREN

LEAVING MIDDLE SEATS ON AIRPLANES VACANT MAY REDUCE RISK OF CORONAVIRUS EXPOSURE

RISK OF BRAIN BLOOD CLOTS IS HIGHER FROM COVID-19 INFECTION THAN FROM COVID-19 VACCINES

EXPERTS CONCERNED ABOUT IMPACT OF J&J CORONAVIRUS VACCINE PAUSE

FREE ONLINE CLASSES FOR THE CF COMMUNITY AT STROLO UNIVERSITY

CFRI JOINS 80 NATIONAL PATIENT GROUPS IN AN OPEN LETTER CALLING ON LAWMAKERS TO REJECT HEALTH POLICIES THAT DISCRIMINATE

OPTION 2 TRIAL TESTING MS1819 FOR EPI POSTS ‘MIXED’ TOPLINE RESULTS

RESPINOVA’S PULSEHALER DEVICE RECEIVES FDA APPROVAL

PHASE 2 TRIAL ADVANCING: BX004, PHAGE THERAPY FOR BACTERIAL INFECTIONS

RACIAL BIAS IN PULSE OXIMETRY MEASUREMENTS

APRIL 24TH IS TAKE BACK DAY – AN IMPORTANT REMINDER TO SAFELY DISPOSE OF UNUSED MEDICATION

CDC: HALF OF ALL US ADULTS HAVE RECEIVED AT LEAST ONE COVID-19 VACCINE DOSE

MARCH, 2021

FEBRUARY, 2021

OP-ED: SB 5020 INCLUDES GROUP KNOWN FOR DISCRIMINATORY PRACTICES

ASTRAZENECA VACCINE APPEARS TO SUBSTANTIALLY REDUCE TRANSMISSION OF THE CORONAVIRUS

FDA TO REVIEW TRIKAFTA FOR PATIENTS AS YOUNG AS SIX YEARS

KINNEAR PHARMACEUTICALS TO RECEIVE UP TO $3M TO FOR DEVELOPMENT OF ANTI-INFECTIVE FROM CF FOUNDATION

TRANSMISSION AND ANTIBIOTIC RESISTANCE OF ACHROMOBACHTER BACTERIA IN CYSTIC FIBROSIS

JANUARY, 2021

AzurRx STARTS DOSING FIRST CF PATIENTS IN STUDY OF LIPASE ENZYME MS1819

MINORITIES IN US OFTEN INELIGIBLE FOR CFTR MODULATORS DUE TO POORLY STUDIED MUTATIONS

UPDATE: WASHINGTON STATE SENATE HEALTH AND LONG TERM CARE COMMITTEE HEARS TESTIMONY ON SB 5020: “Rx DRUG PRICE INCREASES”