Psychosocial Support Programs & Classes

In light of the high rates of depression and anxiety that are common among those impacted by cystic fibrosis (CF), CFRI offers financial support for counseling sessions as well as monthly caregiver support groups. CFRI also offers “Mindfulness 2.0,” an online class which draws upon Mindfulness-Based Stress Reduction techniques. These programs address the impact of chronic illness on emotional health. Participation in these programs helps improve health and quality of life. Counseling assistance is open to the CF community nationwide, and support groups are open to the CF community across the globe.

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Counseling Support to Nationwide CF Community

You can seek professional help

Children and adults with CF as well as their family members (parents, siblings, spouses/partners) are eligible to receive financial support for six individual therapy sessions per year with a licensed provider of their choice. CFRI will cover the cost of your insurance co-pay for six sessions, or pay up to $120 per session for six sessions if you have no insurance, or your provider does not accept insurance or is outside of your network. CFRI will pay the provider directly. Participants must live in the United States. You can select a licensed therapist in your community (for a referral, you can ask your CF social worker).

This program has limited funds and operates on a “first come first serve” basis. Due to high demand, the program often runs out of funding in the second half of the year. To ensure that your sessions are covered, please follow our program procedures as outlined below:

  • Check in with us: BEFORE sending us any invoices, contracts, or other documents, please contact Sabine Brants (sbrants@cfri.org, 650-665-7576) to check if there is funding available for your sessions. If we have funding available, we will send the required paperwork to you as well as your chosen provider. This paperwork needs to be completed BEFORE starting CFRI-supported sessions.
  • Wait for sessions to be approved: Once we receive the completed paperwork from you and the provider, we will let you know that you are approved to start your six CFRI-supported sessions. We will not accept invoices that are submitted without prior approval.
  • Submit assessments and invoices: By participating in the program, you commit to take part in the brief evaluation process. At the first and last of the CFRI-supported sessions, the therapist will ask you to complete two short questionnaires, and submit them to CFRI along with the first and last invoice. Please notify us immediately if you discontinue therapy for whatever reason so the money can be released and used to support other people with CF and their families.

For more information on how to participate in CFRI’s Counseling Support Program, please email Sabine Brants (sbrants@cfri.org.)

This program is made possible through grants from Chiesi USA, Genentech, Ionis, Viatris, Translate Bio, Gilead Sciences, and private donors.

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Caregivers Support Groups: Third Tuesday of Every Month

CFRI provides a monthly CF Caregivers Support Group, which is open to participants across the globe. The groups are facilitated by a social worker well versed in issues facing CF caregivers. Participants are able to participate in person, as well as join from anywhere via telephone.

Two groups to choose from:

  • Parents of children with CF:
    5:00 pm – 6:00 pm PST
  • Parents/Spouses/Partners of Adults with CF:
    6:00 pm – 7:00 pm PST

To Attend in Person:

730 Welch Rd, Palo Alto, CA; 1st Floor Conference Room (both sessions). Please note: Due to the COVID-19 pandemic, in-person support group meetings have been suspended until further notice.

To Participate by Phone or Video Conference:

To participate, please send an email to CFRI to request the registration link. Please allow 3-4 hours before the meeting to register.

Facilitated by Meg Dvorak, LCSW, or Kate Yablonsky, LCSW, CF Social Workers at Stanford

Caregivers Support Groups are sponsored by Chiesi USA, Genentech, Ionis, Viatris, Translate Bio, Gilead Sciences, and private donors.

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Online Support Group for Adults with CF: Third Monday of Every Month

CFRI provides a monthly Online Support Group for Adults with CF, which is open to participants across the globe. The group is facilitated by a social worker well versed in issues facing adults with CF.

The group meets on the third Monday of every month, from 6:00 pm PST to 7:30 pm (9:00 pm – 10:30 pm EST).

To participate, please send an email to CFRI to request the registration link. Please allow 3-4 hours before the meeting to register.

Facilitated by Meg Dvorak, LCSW, or Kate Yablonsky, LCSW, CF Social Workers at Stanford

 

Online Support Groups for Adults with CF are sponsored by Chiesi USA, Genentech, Ionis, Viatris, Translate Bio, Gilead Sciences, and private donors.

 

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Navigating Grief to Growth – Bereavement Support Group

Starting Tuesday, July 6, 5:00 pm PT (8:00 pm ET)

Led by Isabel Stenzel Byrnes, LCSW, MPH

An online discussion and support group for those who have lost a loved one to CF, whether recently or in the past. Led by Isabel Stenzel Byrnes, LCSW, MPH, a grief counselor who also lives with CF, the group will provide a safe place to engage in focused practices to help experience growth in coping with the loss of a loved one. Each meeting will have a different topic but there will also be time for open discussion. Adults and mature teens over age 16 are welcome.

The group will meet every first and third Tuesday of the month at 5:00 pm PT and last 90 minutes. See our events calendar for meeting dates.

To participate, please send an email to CFRI to request the registration link. You only need to register once to attend any of the meetings, which will run through December 2021. Please allow 3-4 hours before the meeting to register.

Sponsored by Chiesi USA, Genentech, Ionis, Viatris, Translate Bio, Gilead Sciences, and private donors.

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Mindfulness 2.0

Starting Tuesday, October 26, 4:15 pm PT

CFRI’s online class “Mindfulness 2.0,” taught by Julie Desch, MD, who herself has cystic fibrosis (CF), will share a new approach to bringing mindfulness into your daily life. It is based on Unified Mindfulness and has been adapted for the CF community. This new series is designed both for those who have taken her classes before and for those completely new to meditation.

Features

  • Class is 6 weeks long (6 sessions on Tuesdays from 4:15 pm to 5:30 pm PT)
  • Open to individuals with CF and their family members (spouses/partners, parents, siblings) from across the United States and beyond
  • Participants must be at least 16 years old
  • The class is online and interactive – participants can see each other, talk, and learn from each other

Topics covered

  • Class One (October 26): Introduction to Unified Mindfulness
  • Class Two (November 2): How to Relax and Recharge with Mindfulness
  • Class Three (November 9): Getting in the Zone & Going with the Flow
  • Class Four (November 16): Feeling Good and the Magic of Music
  • Class Five (November 23): Mindfulness in Daily Life
  • Class Six (November 30): Applying Mindfulness to Inner Opportunities and Obstacles

REGISTER NOW! 

Mindfulness 2.0 sponsored by Chiesi USA, Genentech, Ionis, Viatris, Translate Bio, Gilead Sciences, and private donors.