In January 2025, my friend Claire H. and I decided to take on a big challenge. Claire, who has cystic fibrosis, is 26 years post–double lung transplant and 10 years post–kidney transplant. She is 50 years old. I am 66 years o [...]

Pack your bags, we're going on a trip! We aren’t going to the beach or the mountains—we’re going to the hospital. You’re probably thinking, Oh, no big deal, it’s just a few days away from home. Wrong. It’s a two-week hospital [...]

When I was three years old, I was diagnosed with cystic fibrosis. For the early part of my childhood, my health mainly consisted of frequent visits to the doctor, airway clearance treatments, and countless medications. I was [...]

It’s back-to-school time again! This season brings excitement—but when you’re living with a chronic illness, it can also bring anxiety. I was diagnosed with cystic fibrosis (CF) at just three weeks old, so throughout my child [...]

I remember the first CFRI educational conference I attended. This was decades ago. I was a young adult with CF and had recently moved to the Bay Area from Nebraska. I didn’t know a living soul with CF outside of my family. Wh [...]

A funny thing happened right around the time I sat down to write about my experience with CFRI’s Adult CF Retreat. Although it’s existed for nearly 30 years, evolving to provide those of us fighting Cystic Fibrosis with a saf [...]

My journey as a cystic fibrosis advocate began the moment my son, Aiden, was diagnosed with CF through newborn screening in 2017. Aiden was just a few weeks old, and I was suddenly thrust into a world filled with new challeng [...]

The diagnosis changed everything for me. It was the moment my world shifted and everything I knew about parenting and strength was redefined. I never imagined that raising my child would look like this. My days on parental le [...]

People with cystic fibrosis (CF) are at an increased risk of incontinence. Incontinence is the leakage of urine or fecal matter when coughing, laughing, exercising, or engaging in other activities. Coughing associated with CF [...]

Hormones seem to be a mysterious, unknown part of chronic illness care unless you are talking about reproduction or diabetes. This MUST change. Hormones aren't just about sex, erections, and pregnancy. They allow the entire b [...]