Cystic Fibrosis Research, Inc. (CFRI) is a 501(c)(3) nonprofit organization, founded in 1975.
Our MissionCystic Fibrosis Research, Inc. exists to fund research, to provide educational and personal support, and to spread awareness of cystic fibrosis, a life-threatening genetic disease.
Our VisionAs we work to find a cure for cystic fibrosis, CFRI envisions informing, engaging, and empowering the cystic fibrosis (CF) community to help all who have this challenging disease attain the highest possible quality of life.
Led by our Board of Directors our dedicated staff and many committed volunteers provide the cystic fibrosis (CF) community with a wide range of resources and services.
Our committees include:
Our FundraisingCFRI raises money through individual donations, corporate sponsorships, foundation support, workplace giving and special events. Since 1975, CFRI has raised more than $8 million for cystic fibrosis research and education. For information on how to donate, please visit our How to Donate page click here.
I first learned of CFRI in 1989, when my daughter Lucy was born and diagnosed with cystic fibrosis. My husband and I attended our first conference the following year and have been “regulars” ever since. The knowledge, as well as the comfort we have received over the years from CFRI’s annual conference, newsletter, Discovery Series, and countless other resources has allowed us to be informed advocates for our daughter. The cutting-edge research that CFRI funds annually has led to significant breakthroughs in the treatment of CF, and as a result benefits Lucy and the entire CF community by providing hope and bringing us closer to a cure. I served on the Board of Directors for six years and know first hand how dedicated the CFRI staff, volunteers, and researchers are to improving the lives of those living with cystic fibrosis. CFRI is a lifeline to everyone affected by CF!Bridget Barnes
Mother of a Young
Adult with CF