National CF Conference

CFRI’s 34th Virtual National CF Education Conference:

Illuminating the CF Journey

July 30 – August 1, 2021 (Fri – Sun)

Thank you to all who participated and helped make the Conference such an incredible success! If you were registered, you can access recordings of presentations on the virtual platform until the end of the month. After that, we will upload them on our YouTube and Podbean channels for all to view. Stay tuned!

Click here for a complete schedule.

Click here for a digital program.

CFRI’s National CF Education Conference brings together the national and international cystic fibrosis community for a virtual weekend of content and connection. Nationally-renowned presenters will address subjects that are vital to the CF community. Confirmed speakers include:

John Engelhardt, PhD – Advances in Gene Therapy and Animal Models for Cystic Fibrosis

Gunnar Esiason, MBA – My Life with Cystic Fibrosis, Our Unlocked Futures, and Breaking Down Barriers for the Continued Success of the CF Community

Steven Freedman, MD, PhD – Advancing the GI Frontier For People With CF

Angela Garinis, PhD, CCC-A; Ahmet Uluer, DO, MPH – Hearing is Believing: Hearing Health in Persons with Cystic Fibrosis

Raksha Jain, MD, MSC – Reproductive Health in Men and Women with CF: What Do We Know and What Do We Need to Know?

Jonathan Koff, MD; Benjamin Chan, PhD – Advances in Phage Therapy as a Treatment for Cystic Fibrosis

Taylor Lewis, MA, CSCS – Strength-Building with CF

Amir Moheet, MBBS – CFRD Management Through Technology

Richard Moss, MD – Getting to the After Times – CF and COVID in Year 2

Deepika Polineni, MD, MPH – mRNA Therapy as a Treatment for CF

D.B. Sanders, MD, MS – Pulmonary Exacerbations in the Era of Highly Effective CFTR Modulators

Diane Shader Smith; Maryanne O’Hara; David Weill, MD – Three Perspectives, One Purpose: Why Medicine Needs Memoir

Jennifer Taylor-Cousar, MD, MSCS – Until It’s Done For Everyone: Diversity, Inclusion and Equity in CF Care and Research

Bijal Trivedi, MSc, MA – Book presentation “Breath from Salt”, plus panel discussion (Isabel Stenzel Byrnes, LCSW, MPH, Paul Quinton, PhD, Jeffrey Wine, PhD)

CF and Body Image – Panel of CF adults, facilitated by Meg Dvorak, LCSW

Hear from CFRI-funded researchers on innovative CF research, visit pharmaceutical & medical technology exhibits, and attend support groups and workshops. Socialize with members of the global CF community and honor CF heroes at an inspirational awards ceremony.

Sponsored by Vertex Pharmaceuticals, Genentech, Gilead Sciences, Chiesi USA, AbbVie, and Ionis Pharmaceuticals.

       

               

 

2020 CONFERENCE PRESENTATIONS AVAILABLE TO VIEW ON CFRI’S YOUTUBE CHANNEL. Our stellar line up of experts provide a wealth of information on a range of CF-related topics. The list of speakers is below. To watch on our YouTube channel, click here.

  • James Chmiel, MD – Anti-Inflammatory Therapies
  • Douglas Conrad, MD – CF and Phage Therapy
  • Julie Desch, MD – Learning, Laughing and Loving with CF
  • Marie Egan, MD – CF Pipeline
  • Denis Hadjiliadis, MD – Cancer and CF
  • Nicole Irizarry, DPT – Exercise and CF
  • Richard Moss, MD – COVID-19 Update
  • Virginia O’Hayer, PhD – Acceptance and Committment Therapy (ACT)
  • Caroline Okorie, MD – Sleep and CF
  • Diane Shader Smith – Salt in My Soul
  • Yelizaveta Sher, MD – Psychiatry’s Role in CF Treatment
  • Sriram Vaidyanathan, PhD – CF and CRISPR

In addition, 7 CFRI-funded researchers presented their work:

  • Ana Georgina Cobián Güemes, PhD
  • Martina Gentzsch, PhD
  • Lucas Hoffman, MD, PhD
  • Elizabeth Kramer, MD, PhD
  • Keehoon Lee, PhD
  • Kenichi Okuda, MD, PhD
  • Forest Rohwer, PhD