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Support

CFRI supports and connects our diverse community, from retreats, support groups and community events, to information and referral services.

  • CFRI provides a monthly CF Caregivers Support Group, which is facilitated by a social worker well versed in issues facing CF caregivers. This support group is open to those able to participate in person, as well as to participants nationwide by telephone. For details, click here.

  • Our annual "Embrace" Mothers Retreat and CF Summer Retreat for young adults with CF, their family and friends, provides support, education and fun in a safe environment. For more information, and to register, click here.

  • CFRI is proud to offer support for individual counseling services through our CF Quality of Life Program, a Living Legacy of Peter & Kathy Judge. Through this program, CFRI covers individual co-pays, or provides up to $120 per session for five sessions of counseling with a licensed therapist. In order to be reimbursed, therapists must contact CFRI prior to service delivery to confirm program participation. Individuals diagnosed with CF and family members (parents, siblings and spouses) are eligible. This year, the response from this program was wonderful. The program will restart in 2017 so please visit us again for details. If you have questions, please contact Siri Vaeth Dunn at svdunn@cfri.org or 650.665.7565.

  • CFRI’s annual National Cystic Fibrosis Family Education Conference brings together those impacted by CF – including patients, families, care teams, and scientists – with experts in the field of CF for a weekend of information and support. CFRI's 30 th National Cystic Fibrosis Family Education Conference is scheduled from July 28, 2017 to July 30, 2017 at Sofitel San Francisco Bay. Please save the dates and stay tuned for details about the Early Bird registration discount rate.

  • CFRI's bilingual DVDs, "Putting A Face on Cystic Fibrosis" ("Demostrando La Cara de Fibrosis Quística") and "The Pediatric Cystic Fibrosis Education Conference" ("La Conferencia Pediatrica de Educación Fibrosis Quística") are free to all who request it. To request DVDs, please email cfri@cfri.org.

  • CFRI creates community! CFRI offers a range of events and programs that provide information, support and vital resources, so as to help people navigate the challenges associated with cystic fibrosis. To receive updates about upcoming events and CF resources, click here.







The Importance of Education

I have been meaning to e-mail you since Claire started Kindergarten to let you know how helpful the CFRI booklet "Cystic Fibrosis in the Classroom" was for us. I gave a copy to her teacher, the school principal, the school nurse, and the district nurse to read before we met to set up her 504 plan. I also used a folder I received from the last CFRI conference by Lisa Yourman on what to put in a 504 plan. It was a great help to have the resources to guide me through the process. Setting up her 504 plan went without a hitch! Claire's teacher, school administrators, and nurses were extraordinarily kind and have been willing to help us in any possible way. Thanks so much for all the great work you do at CFRI. Having resources like this makes such a tremendous difference, and I really appreciate all you do.

Lou Ann Alexander
Parent of Child with CF
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