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National CF Conference


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CFRI’s 29th National Cystic Fibrosis Family Education Conference – “Riding the CF Wave” – July 29 through July 31, 2016 at Sofitel San Francisco Bay in Redwood City, California. The program is outstanding! Your registration includes all presentations, meals, reference materials, receptions, workshops and support groups. Early Bird Registration for the full conference is $185 until June 28, 2016. For more details, click here.

Register today!









Match Your Donation!


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Support CF Research: Our Community Still Struggles to Breathe!

Make a donation by June 30th, and it will be matched 100% by the Jessica Fredrick Memorial CF Research Challenge Circle to fund our CF research awards! Click here.

For more ways to give, click here.

CFRI received 4 stars from Charity Navigator.






Mark Your Calendar


Calendar

CF Caregivers Support Group
Tuesday, July 26 7:00 – 9:00 pm PST

29th National CF Family Education Conference - "Riding the CF Wave"
Friday, July 29 - Sunday, July 31
Sofitel San Francisco Bay

CFRI’s Summer Retreat
August 16 – August 21
Vallombrosa Center, Menlo Park, CA

For more events, click here.









CF News & Updates


CFRI Community Summer Issue

In the spring issue of our newsletter, CFRI Community, read about "My Running Journey with CF," "Developing New Biomarkers for Accurate Assessment of CFTR Function," Mothers' Day Tea Kickoff and CFRI's Summer Retreat!

To download a copy, click here. To receive news by mail or email, click here.

For this week's highlights, click here.








CFRI Research


cystic fibrosis research

Since 1975, CFRI has supported cystic fibrosis research at well-established medical facilities through the funding of grants. Our investment in new ideas has enabled researchers to bring new perspectives to the study of this disease.

CFRI research is funded through two programs: the Elizabeth Nash Memorial Fellowship and the New Horizons Campaign.

To learn more, click here.




CF Counseling Services


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FREE counseling services available to the nationwide CF community! As part of CFRI’s CF Quality of Life Program, a Living Legacy of Peter Judge, CFRI will cover the cost per individual counseling session with your selected therapist. There is no charge to you! For details, click here. Made possible by Vertex.

The CF Caregivers Support Group will meet on Tuesday, July 26 (7:00 pm PST) at CFRI. To participate by phone, call 1.860.970.0300 and enter code 7738539#.



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