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CFRI exists to fund CF research, provide personal support,
						 and advocate for the CF community. We're connecting CF
						 resources with community needs.
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CFRI Research

cystic fibrosis research

Since 1975, CFRI has supported cystic fibrosis research at well-established medical facilities through the funding of grants. Our investment in new ideas has enabled researchers to bring new perspectives to the study of this disease.

CFRI research is funded through two programs: the Elizabeth Nash Memorial Fellowship and the New Horizons Campaign.

To learn more, click here.

Donate Today

As 2017 draws to a close, please consider donating to CFRI’s Special Gifts Campaign.

Contributions will be used to support CFRI’s research, education and support programs that are having a positive impact on our CF community. As always, you can make your gift in honor or in memory of a loved one. To read Caleigh’s compelling and inspiring letter, click here.

To donate now, please click here.

CF Advocacy

The struggle to maintain national healthcare legislation that protects access to quality care and therapies is not over.

We will continue to monitor legislative actions and keep you informed.

To join CFRI's Many Voices ~ One Voice CF Advocacy and Awareness Campaign, please click here.

CF Community Voices

New Podcast Episode: Dr. Matthew Porteus Discusses His Research Exploring CF and Genome Editing. Dr. Porteus is a pioneer in the field of genome editing, and his research has demonstrated that gene correction can be achieved in human cells at frequencies high enough to potentially cure patients. Dr. Porteus provides an extraordinarily clear and concise explanation of this exciting new field. To view, click here. CF Community Voices is sponsored by Vertex Pharmaceuticals, Chiesi USA, Genentech, Gilead Sciences, and Proteostasis Therapeutics.


Counseling Support

sunset CFRI provides financial support for individual counseling services in your community – regardless of where you live in the U.S. and regardless of insurance. Individuals diagnosed with CF and their family members (parents, siblings and spouses) are eligible. CFRI covers co-pays or provides up to $120 per session for five sessions of counseling with the licensed therapist of your choice. Therapists must first contact Siri Vaeth Dunn at or 650.665.7565 to participate in the program.

Conference Presentations

Conference Presentations Now Available to View on CFRI’S YouTube Channel! Our stellar line up of experts provided a wealth of information on a range of CF-related topics, including the CF pipeline, CF and adherence, CF pathogens, physical therapy in CF care, CF and adjunctive therapies, respiratory therapy options, lessons from a CF cornerman, and acceptance & belonging growing up with CF.

To watch, click here!

CF Caregivers Support Group

Tree CF Caregivers Support Group! Open to Participants Nationwide!

Two groups to choose from:
1) Parents of children with CF; 2) Parents/Spouses/Partners of Adults with CF. Call in or attend in person on the third Tuesday of the month.

The next meeting is scheduled for Tuesday, December 12th.

For details, click here.
Facilitated by Meg Dvorak, LCSW, CF Social Worker at Stanford.

CFRI Community

CFRI 2014 Summer Issue

CFRI publishes CFRI Community, a quarterly newsletter, to provide the community with exciting cystic fibrosis news and updates.

To download an issue now, click here.

To read our weekly news, click here.

To receive CFRI Community by mail, or to receive our weekly news by email, click here.

Ways to Give


Your support enables us to fund groundbreaking research, produce quality programs and provide educational resources for those with cystic fibrosis, their families and caregivers. To make a donation today, click here.

For more Ways to Give, click here.

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