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CFRI exists to fund CF research, provide personal support,
						 and advocate for the CF community. We're connecting CF
						 resources with community needs.
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CFRI Research


cystic fibrosis research

Since 1975, CFRI has supported cystic fibrosis research at well-established medical facilities through the funding of grants. Our investment in new ideas has enabled researchers to bring new perspectives to the study of this disease.

CFRI research is funded through two programs: the Elizabeth Nash Memorial Fellowship and the New Horizons Campaign.

To learn more, click here.


Bridges to the Future


CFRI's 31st National CF Family Education Conference will take place August 3 - 5, 2018 in Redwood City, CA. We have an exciting group of nationally renowned speakers lined up. Early bird registration is $185 (including all presentations, meals, receptions, and banquet). Limited scholarships are available. For more information and to register, click here.

Sponsored to date by Vertex Pharmaceuticals, Genentech, Gilead Sciences, Chiesi USA, AbbVie, and the Boomer Esiason Foundation.


CF Advocacy


The struggle to maintain national healthcare legislation that protects access to quality care and therapies is not over.

We will continue to monitor legislative actions and keep you informed.

To join CFRI's Many Voices ~ One Voice CF Advocacy and Awareness Campaign, please click here.

To watch or share our advocacy video, click here.


Mothers' Day Celebration!


Support CFRI's Mothers' Day Celebration 2018! This annual tradition involves hundreds of people nationwide, promotes CF awareness, and is our most important fundraiser. The artwork for this year’s card was created by Gianna Gutierrez-Serrato, 8 years old and living with CF. Please join us in raising awareness, hope, and funds for our programs!

If you would like to order Mothers' Day Celebration cards to send to family and friends, please click here, or call Mary at 650.665.7559.

 

 



CF Community Voices


sunset New Podcasts Available!

Paul Mohabir, MD, provides an important overview of cystic fibrosis and hemoptysis, while Elyse Elconin Goldberg shares her personal experience and insights on staying positive through declining PFTs. To view/listen on our Podbean channel, click here. For our YouTube channel, click here.

Sponsored by Vertex Pharmaceuticals, Chiesi USA, and Gilead Sciences. Additional support by Novartis and Genentech.



CF Summer Retreat


Save the Date for the CF Summer Retreat: August 16 - 21, 2018.

CFRI's annual CF Summer Retreat for adults with CF and their families/friends/caregivers will take place August 16 - 21, 2018, at Vallombrosa Retreat Center in Menlo Park, CA. Registration is open!

For information, click here.

CF Summer Retreat is sponsored by AbbVie and Gilead Sciences.



CF Caregivers Support Group


Tree CF Caregivers Support Group - Open to Participants Nationwide!

Two groups to choose from:
1) Parents of children with CF; 2) Parents/Spouses/Partners of Adults with CF. Call in or attend in person on the third Tuesday of the month.

The next meeting is scheduled for Tuesday, April 17th.


For details, click here.
Facilitated by Meg Dvorak, LCSW, CF Social Worker at Stanford.




CFRI Community


CFRI 2014 Summer Issue

CFRI publishes CFRI Community, a quarterly newsletter, to provide the community with exciting cystic fibrosis news and updates.

To download an issue now, click here.

To read our weekly news, click here.

To receive CFRI Community by mail, or to receive our weekly news by email, click here.









Ways to Give


Breathe

Your support enables us to fund groundbreaking research, produce quality programs and provide educational resources for those with cystic fibrosis, their families and caregivers. To make a donation today, click here.

For more Ways to Give, click here.

Shop at AmazonSmile and 0.5% of your purchase price will be donated to CFRI! www.smile.amazon.com




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