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CFRI exists to fund CF research, provide personal support,
						 and advocate for the CF community. We're connecting CF
						 resources with community needs.
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CFRI Research


cystic fibrosis research

Since 1975, CFRI has supported cystic fibrosis research at well-established medical facilities through the funding of grants. Our investment in new ideas has enabled researchers to bring new perspectives to the study of this disease.

CFRI research is funded through two programs: the Elizabeth Nash Memorial Fellowship and the New Horizons Campaign.

To learn more, click here.


Embrace Mothers Retreat


Embrace: A Weekend Retreat for Mothers of Children & Adults with CF

Join us for a weekend of connection and rejuvenation! Friday, May 4 - Sunday, May 6, 2018, Vallombrosa Retreat Center, Menlo Park, CA. $150 includes retreat activities, private room at Vallombrosa, and all meals.

Click here to register!


CF Advocacy


The struggle to maintain national healthcare legislation that protects access to quality care and therapies is not over.

We will continue to monitor legislative actions and keep you informed.

To join CFRI's Many Voices ~ One Voice CF Advocacy and Awareness Campaign, please click here.

To watch or share our advocacy video, click here.


CF Community Voices


Colleen Dunn, RRT, CCRC, Translational Research Administrator at Stanford's CF Center, presents “Research Participation: The Basics and Beyond,” a comprehensive and inspirational overview of clinical trial participation.

To view, click here. CF Community Voices is sponsored by Vertex Pharmaceuticals, Chiesi USA, Genentech, Gilead Sciences, and Proteostasis Therapeutics.

 



Counseling Support


sunset CFRI provides financial support for individual counseling services, regardless of where you live in the U.S. and regardless of insurance. Individuals with CF and their family members (parents, siblings and spouses) are eligible. CFRI covers co-pays or provides up to $120 per session for eight sessions of counseling with the licensed therapist of your choice. Therapists must first contact Siri Vaeth at svdunn@cfri.org or 650.665.7565 to participate.

For more information, click here.




Living Mindfully with CF


Living Mindfully with CF; online class registration closed.

Thanks to all who registered. The next class, offered free of charge to the CF community, will start some time in summer 2018. Please check our website for updates.

For more information, click here.




CF Caregivers Support Group


Tree CF Caregivers Support Group - Open to Participants Nationwide!

Two groups to choose from:
1) Parents of children with CF; 2) Parents/Spouses/Partners of Adults with CF. Call in or attend in person on the third Tuesday of the month.

The next meeting is scheduled for Tuesday, February 20th.


For details, click here.
Facilitated by Meg Dvorak, LCSW, CF Social Worker at Stanford.




CFRI Community


CFRI 2014 Summer Issue

CFRI publishes CFRI Community, a quarterly newsletter, to provide the community with exciting cystic fibrosis news and updates.

To download an issue now, click here.

To read our weekly news, click here.

To receive CFRI Community by mail, or to receive our weekly news by email, click here.









Ways to Give


Breathe

Your support enables us to fund groundbreaking research, produce quality programs and provide educational resources for those with cystic fibrosis, their families and caregivers. To make a donation today, click here.

For more Ways to Give, click here.

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