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CFRI exists to fund CF research, provide personal support,
						 and advocate for the CF community. We're connecting CF
						 resources with community needs.
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CFRI Research

cystic fibrosis research

Since 1975, CFRI has supported cystic fibrosis research at well-established medical facilities through the funding of grants. Our investment in new ideas has enabled researchers to bring new perspectives to the study of this disease.

CFRI research is funded through two programs: the Elizabeth Nash Memorial Fellowship and the New Horizons Campaign.

To learn more, click here.

Moonlight Masquerade

maskCFRI’S Moonlight Masquerade, Saturday, October 28, 2017 is officially sold out! Thank You to everybody who bought tickets to celebrate with us! If you would like to make a donation in honor of our 2017 CF Champion, Dr. Rick Moss of Stanford, please click here. Sponsors: Vertex Pharmaceuticals, AbbVie, Chiesi USA, Novartis Pharmaceuticals, Gilead Sciences, and NBC Bay Area.

CF Advocacy

Due to a lack of votes, the Senate will not vote on the proposed Graham-Cassidy legislation to repeal the Affordable Care Act (ACA).

Thank you to all who raised your voices to encourage your senators to reject this highly flawed legislation.

We will continue to keep you informed of proposed legislation that impacts our CF community through our Many Voices ~ One Voice CF Advocacy and Awareness Campaign.

CF Community Voices

My Personal CF Journey - From Infancy to Advocacy. Jacob Fraker shares his life journey with CF. Currently working on his social work degree, Jacob is serving as CFRI's legislative analyst. Jacob shares the factors that motivated him to focus on his health and pursue his goals of service and advocacy for those with CF, the LGBTQ community, and others who need a voice. Click here to listen or watch on PodBean. Sponsored by Vertex Pharmaceuticals, Chiesi USA, Gilead Sciences, Proteostasis Therapeutics, and Genentech, with additional support from Allergan.

Counseling Support

sunset CFRI provides financial support for individual counseling services in your community – regardless of where you live in the U.S. and regardless of insurance. Individuals diagnosed with CF and their family members (parents, siblings and spouses) are eligible. CFRI covers co-pays or provides up to $120 per session for five sessions of counseling with the licensed therapist of your choice. Therapists must first contact Siri Vaeth Dunn at or 650.665.7565 to participate in the program.

Conference Presentations

Conference Presentations Now Available to View on CFRI’S YouTube Channel! Our stellar line up of experts provided a wealth of information on a range of CF-related topics, including the CF pipeline, CF and adherence, CF pathogens, physical therapy in CF care, CF and adjunctive therapies, respiratory therapy options, lessons from a CF cornerman, and acceptance & belonging growing up with CF.

To watch, click here!

CF Caregivers Support Group

Tree CF Caregivers Support Group! Open to Participants Nationwide!

Two groups to choose from:
1) Parents of children with CF; 2) Parents/Spouses/Partners of Adults with CF. Call in or attend in person on the third Tuesday of the month.

The next meeting is scheduled on Tuesday, October 16th.

For details, click here.
Facilitated by Meg Dvorak, LCSW, CF Social Worker at Stanford.

CFRI Community

CFRI 2014 Summer Issue

CFRI publishes CFRI Community, a quarterly newsletter, to provide the community with exciting cystic fibrosis news and updates.

To download an issue now, click here.

To read our weekly news, click here.

To receive CFRI Community by mail, or to receive our weekly news by email, click here.

Ways to Give


Your support enables us to fund groundbreaking research, produce quality programs and provide educational resources for those with cystic fibrosis, their families and caregivers. To make a donation today, click here.

For more Ways to Give, click here.

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