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CFRI exists to fund CF research, provide personal support,
						 and advocate for the CF community. We're connecting CF
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CFRI Research

cystic fibrosis research

Since 1975, CFRI has supported cystic fibrosis research at well-established medical facilities through the funding of grants. Our investment in new ideas has enabled researchers to bring new perspectives to the study of this disease.

CFRI research is funded through two programs: the Elizabeth Nash Memorial Fellowship and the New Horizons Campaign.

To learn more, click here.

Moonlight Masquerade

maskCFRI’S Moonlight Masquerade, Saturday, October 28, 2017. Celebrate exciting CF research progress. Honor our 2017 CF Champion, Dr. Rick Moss of Stanford. Enjoy gourmet delicacies, fine wines, fabulous entertainment, and dancing. Proceeds support CFRI’s research, education, support, and advocacy programs. $165 per person / $150 per person when buying two tickets or more. For tickets, click here. Sponsors: Vertex Pharmaceuticals, AbbVie, Chiesi USA, Novartis Pharmaceuticals, Gilead Sciences, and NBC Bay Area.

Conference Presentations!

Conference Presentations Now Available to View on CFRI’S YouTube Channel! Our stellar line up of experts provided a wealth of information on a range of CF-related topics, including the CF pipeline, CF and adherence, CF pathogens, physical therapy in CF care, CF and adjunctive therapies, respiratory therapy options, lessons from a CF cornerman, and acceptance & belonging growing up with CF.

To watch, click here!

CF Community Voices

New podcasts available! CF and Enteral Feeding – The Whys and Hows of G-Tubes. Hear from Julie Matel, RD, and Zachary Sellers, MD, from the CF Center at Lucile Packard Children’s Hospital Stanford, as well as Darcy Ogle, whose daughter has had great success with a G-tube. Click here to listen or watch on PodBean. Videos are available on our YouTube channel.

Sponsored by Vertex Pharmaceuticals, Chiesi USA, Gilead Sciences, Proteostasis Therapeutics, and Genentech, with additional support from Allergan.

Counseling Support

sunset CFRI provides financial support for individual counseling services in your community – regardless of where you live in the U.S. and regardless of insurance. Individuals diagnosed with CF and their family members (parents, siblings and spouses) are eligible. CFRI covers co-pays or provides up to $120 per session for five sessions of counseling with the licensed therapist of your choice. Therapists must first contact Siri Vaeth Dunn at or 650.665.7565 to participate in the program.

MBSR Class This Fall!

bubble soccer

Online Mindfulness Based Stress Reduction Class -- Fall Class Begins September 28th! Led by the phenomenal Julie Desch, MD, this class is open to participants nationwide, and is free for Individuals with CF and only $50 for family members and caregivers. MBSR combines body awareness, mindfulness meditation and yoga to help those living with CF to address anxiety, depression, chronic pain, and stress. For more information or to register: 650.665.7576 or click here. Sponsored by Vertex Pharmaceuticals and Genentech.

CF Caregivers Support Group

Tree CF Caregivers Support Group! Open to Participants Nationwide!

Two groups to choose from:
1) Parents of children with CF; 2) Parents/Spouses/Partners of Adults with CF. Call in or attend in person on the third Tuesday of the month.

The next meeting is scheduled on Tuesday, September 19th.

For details, click here.
Facilitated by Meg Dvorak, LCSW, CF Social Worker at Stanford.

CFRI Community

CFRI 2014 Summer Issue

CFRI publishes CFRI Community, a quarterly newsletter, to provide the community with exciting cystic fibrosis news and updates.

To download an issue now, click here.

To read our weekly news, click here.

To receive CFRI Community by mail, or to receive our weekly news by email, click here.

Ways to Give


Your support enables us to fund groundbreaking research, produce quality programs and provide educational resources for those with cystic fibrosis, their families and caregivers. To make a donation today, click here.

For more Ways to Give, click here.

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