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CFRI exists to fund CF research, provide personal support,
						 and advocate for the CF community. We're connecting CF
						 resources with community needs.
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CFRI Research


cystic fibrosis research

Since 1975, CFRI has supported cystic fibrosis research at well-established medical facilities through the funding of grants. Our investment in new ideas has enabled researchers to bring new perspectives to the study of this disease.

CFRI research is funded through two programs: the Elizabeth Nash Memorial Fellowship and the New Horizons Campaign.

To learn more, click here.


Embrace Mothers Retreat


Embrace: A Weekend Retreat for Mothers of Children & Adults with CF

Join us for a weekend of connection and rejuvenation! Friday, May 4 - Sunday, May 6, 2018, Vallombrosa Retreat Center, Menlo Park, CA. $150 includes retreat activities, private room at Vallombrosa, and all meals.

Click here to register!


CF Advocacy


The struggle to maintain national healthcare legislation that protects access to quality care and therapies is not over.

We will continue to monitor legislative actions and keep you informed.

To join CFRI's Many Voices ~ One Voice CF Advocacy and Awareness Campaign, please click here.

To watch or share our advocacy video, click here.


CF Community Voices


Join us on Thursday, March 15 at 6:15pm in our Palo Alto office for a podcast recording event. Our speakers are Paul Mohabir, Director of the Adult CF Center at Stanford, who will speak on hemoptysis and what you should know about it, and Elyse Elconin Goldberg, who will talk about “Staying Positive through Declining PFTs: My Pre-Transplant Experience.”. Refreshments and snacks will be provided.

CF Community Voices is sponsored by Vertex Pharmaceuticals, Chiesi USA, and Gilead Sciences.

 



Bridges to the Future


sunset CFRI's 31st National CF Family Education Conference will take place August 3 - 5, 2018 in Redwood City, CA. We have an exciting group of nationally renowned speakers lined up. Early bird registration is $185 (including all presentations, meals, receptions, and banquet). Limited scholarships are available. For more information and to register, click here.

Sponsored to date by Vertex Pharmaceuticals, Genentech, Gilead Sciences, Chiesi USA, AbbVie, and the Boomer Esiason Foundation.



CF Summer Retreat


Save the Date for the CF Summer Retreat: August 16 - 21, 2018.

CFRI's annual CF Summer Retreat for adults with CF and their families/friends/caregivers will take place August 16 - 21, 2018, at Vallombrosa Retreat Center in Menlo Park, CA. Registration coming soon! Please check our website regularly for updates.

For more information, click here.




CF Caregivers Support Group


Tree CF Caregivers Support Group - Open to Participants Nationwide!

Two groups to choose from:
1) Parents of children with CF; 2) Parents/Spouses/Partners of Adults with CF. Call in or attend in person on the third Tuesday of the month.

The next meeting is scheduled for Tuesday, March 20th.


For details, click here.
Facilitated by Meg Dvorak, LCSW, CF Social Worker at Stanford.




CFRI Community


CFRI 2014 Summer Issue

CFRI publishes CFRI Community, a quarterly newsletter, to provide the community with exciting cystic fibrosis news and updates.

To download an issue now, click here.

To read our weekly news, click here.

To receive CFRI Community by mail, or to receive our weekly news by email, click here.









Ways to Give


Breathe

Your support enables us to fund groundbreaking research, produce quality programs and provide educational resources for those with cystic fibrosis, their families and caregivers. To make a donation today, click here.

For more Ways to Give, click here.

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