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CFRI exists to fund CF research, provide personal support,
						 and advocate for the CF community. We're connecting CF
						 resources with community needs.

CFRI Research


cystic fibrosis research

Since 1975, CFRI has supported cystic fibrosis research at well-established medical facilities through the funding of grants. Our investment in new ideas has enabled researchers to bring new perspectives to the study of this disease.

CFRI research is funded through two programs: the Elizabeth Nash Memorial Fellowship and the New Horizons Campaign.

To learn more, click here.




CFRI Community


CFRI Community

CFRI publishes CFRI Community three times a year to provide you with cystic fibrosis updates and resources.

In our fall issue, we hope you will enjoy reading the many important articles including, A Path To A Resilient Character, New CF Drugs Advance Hope and Quality of Life for Patients and Their Families, Cystic Fibrosis and Cancer: The Need for Awareness and Screening, and more.

To download an issue, click here.









CF Discovery Series - Nov. 11


Julie Matel, Clinical DieticianJoin us for our next CF Discovery Series presentation, Gastrointestinal Challenges in Cystic Fibrosis: Enzymes, Laxatives and Beyond, on Tuesday, November 11 (6:30 p.m. - 7:00 p.m. PST) at the Crowne Plaza hotel in Palo Alto, CA. Julie Matel, MS, RD, CDE, Clinical Dietitian, Lucile Packard Children's Hospital Stanford, will share the latest treatments and strategies to maintain gastrointestinal health.

To watch online, click here on the day of the event.



Genetic Counselors Webinar


newborn screening

CFRI hosted a webinar series, Application of CFTR Genotype-Phenotype Information to Newborn Screening for CF in California, by the Johns Hopkins University and the California Department of Public Health for genetic counselors.

To watch a recording of Part I, click here.
To watch a recording of Part II, click here. To access the PowerPoint presentation of Part II, click here.

For CEU applications, click here.










Taking CF to College


sjsuOur recent CF Discovery Series presentation, Taking CF to College: Resources & Tools for Success took place in Palo Alto, CA on October 14.

Guest speakers Karla Larson, an academic advisor at SJSU, and Roni Zieger, MD, at Smart Patients, shared important tips and resources to help students with CF prepare for college.

To watch online, click here.



Donate Today


Breathe

Your support enables us to fund groundbreaking research, produce quality programs and provide educational resources for those with cystic fibrosis, their families and caregivers. To make a donation now, click here.

Great Nonprofits recognizes CFRI as a top-rated 501(C)(3) charity. To read reviews, click here.

Shop at AmazonSmile and 0.5% of your purchase price will be donated to CFRI! www.smile.amazon.com




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