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CFRI exists to fund CF research, provide personal support,
						 and advocate for the CF community. We're connecting CF
						 resources with community needs.
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CF Research


cystic fibrosis research

Since 1975, CFRI has supported cystic fibrosis research at well-established medical facilities through the funding of grants. Our investment in new ideas has enabled researchers to bring new perspectives to the study of this disease.

CFRI research is funded through two programs: the Elizabeth Nash Memorial Fellowship and the New Horizons Campaign.

To learn more, click here.




National CF Conference


BalloonsSave the Date! CFRI’s 30th National CF Family Education Conference July 28 – July 30, 2017! It is our 30th conference anniversary and we have a stellar line up of presenters, including John Clancy, MD, Kristin Riekert, PhD, Karen Von Berg, DPT, John Mark, MD, and Paul Quinton, PhD. We will also have fantastic receptions, an awards banquet and a celebratory dance party. The conference will be held at Pullman San Francisco Bay (formerly Sofitel). To register early, click here.



CF Advocacy


The Senate has released its proposed replacement for the Affordable Care Act (ACA), and it contains many provisions that are detrimental to the cystic fibrosis community. We must let our Senators know that this health care act will bring harm to the CF community and the rare disease community. Time is critical: The Senate hopes to vote prior to the July 4th break!

Take Action Now! Click here.




CF Community Voices


New video podcasts on finding balance as a mother of children with CF and on the power of diagnosis stories are here! In the latest videos, the perspectives of mothers of children with CF are explored and movingly shared. Both podcasts are part of CFRI’s Embrace Mother’s Retreat.

Click here to watch or listen! If you are unable to view the podcast, you can also see the videos on our YouTube channel.




Counseling Support


sunset CFRI provides financial support for individual counseling services in your community – regardless of where you live in the U.S. and regardless of insurance. Individuals diagnosed with CF and their family members (parents, siblings and spouses) are eligible. CFRI covers co-pays or provides up to $120 per session for five sessions of counseling with the licensed therapist of your choice. Therapists must first contact Siri Vaeth Dunn at svdunn@cfri.org or 650.665.7565 to participate in the program.




CF Summer Retreat


bubble soccer

CFRI CF Summer Retreat, "Outside Expectations," will be held Sunday, July 30 through Saturday, August 5. Taking place at Vallombrosa Center in Menlo Park, California, the Retreat provides a safe, supportive and fun environment for adults with CF and their friends and families. Enjoy presentations on topics impacting adults with CF, as well as yoga, art, rap sessions, exercise, and many other activities. Individuals with CF must adhere to CFRI’s Infection Control Policy. For more information, click here.





CF Caregivers Support Group


Tree CF Caregivers Support Group! Open to Participants Nationwide!

Two groups to choose from:
1) Parents of children with CF; 2) Parents/Spouses/Partners of Adults with CF.
Call in or attend in person on the third Tuesday of the month. Facilitated by Meg Dvorak, LCSW, CF Social Worker at Stanford.

For details, click here!




CFRI Community


CFRI 2014 Summer Issue

CFRI publishes CFRI Community, a quarterly newsletter, to provide the community with exciting cystic fibrosis news and updates.

To download an issue now, click here.

To read our weekly news, click here.

To receive CFRI Community by mail, or to receive our weekly news by email, click here.









Ways to Give


Breathe

Your support enables us to fund groundbreaking research, produce quality programs and provide educational resources for those with cystic fibrosis, their families and caregivers. To make a donation today, click here.

For more Ways to Give, click here.

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