Sign up link
CFRI exists to fund CF research, provide personal support,
						 and advocate for the CF community. We're connecting CF
						 resources with community needs.
En Espanol

Breaking News! Orkambi


Orkambi

It is a historic time for people with cystic fibrosis (CF) who are homozygous for the F508del mutation, as recently, the Food and Drug Administration (FDA) approved Orkambi, a two-drug therapy created by Vertex Pharmaceuticals which combines Kalydeco (a CFTR potentiator) with Lumacaftor (a CFTR corrector) in a single pill designed to address this specific genetic defect.

To read more about this exciting news, click here.

To read about CFRI's funded research, click here.




National CF Conference


CFRI 28th National Cystic Fibrosis Family Education Conference

CFRI's 28th National Cystic Fibrosis Family Education Conference, "Partners in Progress," (July 31 - Aug 2) will bring together experts in the field of cystic fibrosis to provide the latest updates in research and care to our diverse community.

Register now! Click here. For the full program, click here.

Early Bird registration discount ends June 30 and special rate at Sofitel San Francisco Bay is guaranteed only through July 8.





A Magical Evening


A Magical Evening at CarolandsJoin us for "A Magical Evening at Carolands" on Friday, September 25 (7 pm -10 pm) for CFRI's 40th Anniversary. Few settings in California are as breathtaking as the historic and exclusive Carolands chateau in Hillsborough. Celebrate progress in CF research, while enjoying gourmet small plates, fine wines, delectable desserts, fabulous entertainment, and an exciting live auction. This soirée will raise vital funds for CFRI’s research and education programs. Tickets are expected to sell out. Buy your tickets today! Click here.



Children's Hospital Los Angeles


One-day Conference at CHLADr. Thomas Keens of Children’s Hospital Los Angeles (CHLA) is hosting the live streaming of presentations from our 28th National CF Family Education Conference on Saturday, August 1, to make this valuable information available to those who cannot travel to Northern California. This is open to families from all Southern California CF centers! Streamed to the John Stauffer Conference Room at CHLA, participants can ask their questions in real time. The cost is only $25, and lunch will be provided. Register now! Click here.



CF Summer Retreat


CFRI Summer Retreat

CFRI's CF Summer Retreat (Aug. 2 - Aug. 9) provides a safe and welcoming environment aimed at enhancing positive coping skills, social support and education for people who share common experiences with CF. Adults with CF, as well as their family members and friends, are encouraged to register. Using educational seminars, art workshops and daily exercise sessions such as Pound® and yoga, the retreat helps adults expand their healing toolbox beyond the day-to-day medical regimen. Register early! Click here.





CFRI Community


CFRI Community Summer Issue

In the summer issue of our quarterly newsletter, "CFRI Community," read exciting articles such as Measuring CFTR Function in Humans with a Simple Sweat Test, Cystic Fibrosis and Complementary Alternative Medicine: An Integrative/Holistic Approach, and A Powerful Embrace: CFRI's Retreat for Mothers of Those with CF. To download an electronic copy, click here.

For CFRI's Weekly News, click here.

For CFRI's Website Guide, click here.








Guide Star - CFRICharity Nav - CFRI                           Facebook                 Charity Nav - CFRI           Twitter
Home | About Us | Events | Resources | About CF | Our Research | Volunteers | Fundraising | Contact Us
©Cystic Fibrosis Research, Inc., 1999- All Rights Reserved | Privacy Statement | Disclaimer