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CFRI exists to fund CF research, provide personal support,
						 and advocate for the CF community. We're connecting CF
						 resources with community needs.

CFRI Research


cystic fibrosis research

Since 1975, CFRI has supported cystic fibrosis research at well-established medical facilities through the funding of grants. Our investment in new ideas has enabled researchers to bring new perspectives to the study of this disease.

CFRI research is funded through two programs: the Elizabeth Nash Memorial Fellowship and the New Horizons Campaign.

To learn more, click here.




Upcoming Events!


Calendar

CFRI's 27th National Family
Cystic Fibrosis Education Conference

August 1 - August 3, 2014
Sofitel San Francisco Bay
Register now
   Hotel reservations

CFRI's Teen and Adult Retreat
July 27 - August 1, 2014
Vallombrosa Center
Register now

CF Golf Tournament at Pasatiempo
Monday, August 4, 2014
Pasatiempo Golf Club
Register now


To read CFRI's Infection Control Policy,
click here
.



Press Release


field of flowers

Vertex Pharmaceuticals Announces Success in the Phase 3 Studies of Lumacaftor in Combination with Ivacaftor in Treating the Underlying Cause of Cystic Fibrosis in People with Two Copies of the F508del Mutation, the Most Common Form of the Disease

"The outcomes of this trial are extremely significant in the life cycle of cystic fibrosis. Today is a milestone day, and validates the CF research community’s..." Click here to read more.




Genetic Counselors Webinar


newborn screening

CFRI is hosting a webinar series, Application of CFTR Genotype-Phenotype Information to Newborn Screening for CF in California, presented by Johns Hopkins University and the California Department of Public Health for genetic counselors. For CEU forms, click here.

To watch a recording of Part I, click here.

To watch a recording of Part II, click here. To access the PowerPoint presentation of Part II, click here.










Wine for a Cure!


Wine for a Cure

Join us at Wine for a Cure on Sunday, October 19 (3:00 p.m. - 7:00 p.m.) at The Purple Orchid Wine Country Resort & Spa. The setting is breathtaking. The food – prepared by On the Vine – is delectable. The wines – created and poured by notable vintners, including Steven Kent, La Rochelle, Caddis and Picazo, are extraordinary. In addition to offering bountiful hors’ d’oeuvres, wine tasting, dinner, music, and the exciting auction, CFRI will honor an inspiring individual with the “Caregiver of the Year Award.” Register now











CFRI Community


CFRI 2014 Summer Issue

CFRI publishes CFRI Community three times a year to provide you with cystic fibrosis updates and resources.

In our summer issue, we hope you will enjoy reading the many important articles including, Diagnosis Fibrosis Quística, Touching the Future, Cystic Fibrosis Drug Update, Cystic Fibrosis in India, Safety Follows Wisdom, and Cystic Fibrosis Through the Ages.

To download an issue, click here.









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