"Fixing the Basic Defect"
Jeffrey Wine, Ph.D., Director, Cystic Fibrosis Research Laboratory, Stanford University, will discuss a new class of groundbreaking drugs, including Kalydeco™ by Vertex Pharmaceuticals, at CFRI's General Membership Meeting on Wednesday, May 23, 6:30-8:30 PM.
Ask your questions in person or online via CFRIlive™. For the location, click here. To watch online, sign up for a free account on USTREAM and on the day of the event, search for
CFRI LIVE.
|
25th National CF Conference
Register now for CFRI's 25th National CF Family Education Conference!
This year's conference, Facing CF Together with Confidence!, is scheduled from July 27 to July 29 and will take place at the Sofitel Hotel in Redwood City, CA. The conference connects families, care teams and scientists from across the country and abroad.
For an
Early Bird discount, or to apply for a scholarship, click here.
|
The Power of Two
Don't miss the last screening of the award-winning film,
The Power of Two, in the
Bay Area!
The Power of Two will be showing at Livermore 13 Cinemas on Sunday, May 20, at 5 PM, as part of the 4th annual
Wine for a Cure event to benefit CFRI. After the special screening, there will be a panel discussion where the cast and crew will be available to answer your questions.
For tickets,
click here.
|
CFRInews
CFRI publishes CFRInewsTM periodically to provide you with CF resources and updates.
Read about Kalydeco, Allergic BronchoPulmonary Aspergillosis (ABPA), CF and Siblings, CF Liver Disease and more in this year's spring issue.
To receive CFRInewsTM by mail or email,
click here.
To download an issue, click here.
|
Eating Disorders and CF
Join us for The Who, What, When, Why of Eating Disorders - and CF on Tuesday, June 12, 6 PM (PST) / 9 PM (EST).
This presentation is a part of CFRI and Stanford's CF Discovery Series™. Kathleen Kara Fitzpatrick, M.D., from Lucile Packard Children's Hospital, will discuss WHO gets eating disorders; WHAT can we do about them; WHEN do we get treatment; and WHY do they happen. For more details, click here.
|
CFRI RetrEAT
CFRI's Teen and Adult Retreat brings together people with CF, their family members and friends, in a safe and healthy environment for a week of support, education, nutrition, exercise and meaningful activities.
The theme of this year's retreat is
CFRI RetrEAT: Nourishment for the Soul. It will take place at Vallombrosa Center in Menlo Park, CA, from July 9 to August 5.
To register, click here.
|
|
