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  • Tuesday, August 29, 2017 10:30 am PST - Upcoming Podcast Event: Cystic Fibrosis and Enteral Feeding – The Whys and Hows of G-Tubes.For those who live in the SF Bay Area, please join us for two fascinating presentations on CF and feeding tubes. Hear from the professional expert, Julie Matel, MS, RD, dietitian at the CF Center at Lucile Packard Children’s Hospital Stanford, as well as a personal expert, Darcy Ogle, whose daughter has had great success with a G-tube. This morning presentation will take place on Tuesday, August 29, at 10:30 am PST at CFRI’s office (1731 Embarcadero Road, Suite 210, Palo Alto). Join us for breakfast snacks and valuable information. The two podcasts will be available on our YouTube and podcast channels as a lasting and accessible resource. Sponsored by Vertex Pharmaceuticals, Chiesi USA, Gilead Sciences, Proteostasis Therapeutics, and Genentech, with additional support from Allergan. Click here or join us in person!

 

  • Thursday, September 28, 2017 6:00 pm PST - Online Mindfulness Based Stress Reduction Class – Fall Class Begins September 28th! Led by the phenomenal Julie Desch, MD, this class is open to participants nationwide, and is free for Individuals with CF and only $50 for family members and caregivers. MBSR combines body awareness, mindfulness meditation and yoga to help those living with CF to address anxiety, depression, chronic pain, and stress. Registration includes the MBSR workbook, 8 class sessions and online retreat. The first online fall class begins Thursday, September 28th at 6:00 pm PST. All registrants must be at least 16 years old. For more information or to register: 650.665.7576 or click hereSponsored by Vertex Pharmaceuticals and Genentech.

 

  • Saturday, October 28, 2017, 6:00 pm - 11:00 pm -CFRI's Moonlight Masquerade - A Gala to Support Cystic Fibrosis Research, Education, Suppport, & Advocacy Programs . Celebrate CFRI's four decades of CF research progress. Enjoy gourmet delicacies, fine wines, and fabulous entertainment. Honor our 2017 CF Champion, Dr. Rick Moss of Stanford. Bid in our exciting auction and end the night on the dance floor. $165 per person/ $300 per couple. For more information, and to buy tickets, click here.



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