Resources

CFRI offers a growing wealth of resources for the cystic fibrosis community.

Medications: In-Depth Information

We are pleased to bring you ePOCRATES® MedSearch for instant access to information about medications. This web site is provided to the CF community as a supplementary resource only. Nothing can substitute for the expertise of healthcare professionals. Always consult with your health care team regarding which medications are best for your unique situation.

Diverticular Disease
Hypertension, Essential
Zithromax
amoxicillin
PDA Medical Software
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Type the name of a medication in the window provided above, and you will access the ePOCRATES® website. Consult your primary health care provider if you have questions or concerns about any medical issues or conditions. Health information found at CFRI, including search engine resources, is not a prescription for your personal medical conditions or needs.

State Assistance Programs

A New Listing from CFRI

CFRI has compiled a comprehensive state by state listing of assistance programs across the country. Please let us know of additions or corrections so we can keep our information as current as possible.

Click here for CFRI's listing of State Assistance Programs.

CFRINews

Our newsletters are on file and can be downloaded at any time. They offer information about CF research, educational events and notes of interest to those in the CF community. Articles also discuss transitions in the lives of those with CF.

CFRI Publications

Educational materials available include Cystic Fibrosis in the Classroom (3rd edition), which is also available in English and Spanish, and the Cystic Fibrosis Website Guide. These can be ordered from our office free of charge, or downloaded directly.

We send packets to individuals, CF Centers, clinics, schools and other groups upon request that include additional information about cystic fibrosis. These are free of charge.

Educational DVDs and CDs

DVDs and CDs of presentations at CFRI’s National Cystic Fibrosis Family Education Conference can be ordered from our office for the cost of postage and handling. DVDs of Stanford’s CF Education Days and CFRI’s General Membership Meetings are also available.

The Importance of Education

I have been meaning to e-mail you since Claire started Kindergarten to let you know how helpful the CFRI booklet "Cystic Fibrosis in the Classroom" was for us. I gave a copy to her teacher, the school principal, the school nurse, and the district nurse to read before we met to set up her 504 plan. I also used a folder I received from the last CFRI conference by Lisa Yourman on what to put in a 504 plan. It was a great help to have the resources to guide me through the process. Setting up her 504 plan went without a hitch! Claire's teacher, school administrators, and nurses were extraordinarily kind and have been willing to help us in any possible way. Thanks so much for all the great work you do at CFRI. Having resources like this makes such a tremendous difference, and I really appreciate all you do.

Lou Ann Alexander
Parent of Child with CF