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CFRI Newsletter

Issues of our newsletter, CFRI Community, can be downloaded at any time. They offer information about CF research, educational events and notes of interest to those in the CF community. Articles also discuss transitions in the lives of those with CF.

CFRI Publications

Educational materials available include Cystic Fibrosis in the Classroom (in English and Spanish) and the Website Guide for CF Resources. These can be downloaded online or ordered from our office.

We send packets to individuals, CF Centers, clinics, schools and other groups upon request. Please contact us at

CFRIlive! Webcasts

Our CF Discovery Series and other presentations are broadcast online LIVE to give viewers the opportunity to ask questions from home. For information about our upcoming presentation, or to watch recordings of past presentations, click here.

The Importance of Education

I have been meaning to e-mail you since Claire started Kindergarten to let you know how helpful the CFRI booklet "Cystic Fibrosis in the Classroom" was for us. I gave a copy to her teacher, the school principal, the school nurse, and the district nurse to read before we met to set up her 504 plan. I also used a folder I received from the last CFRI conference by Lisa Yourman on what to put in a 504 plan. It was a great help to have the resources to guide me through the process. Setting up her 504 plan went without a hitch! Claire's teacher, school administrators, and nurses were extraordinarily kind and have been willing to help us in any possible way. Thanks so much for all the great work you do at CFRI. Having resources like this makes such a tremendous difference, and I really appreciate all you do.

Lou Ann Alexander
Parent of Child with CF
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