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Cystic Fibrosis Research, Inc. (CFRI)

Privacy Policy

At CFRI, your personal information, such as your name, postal and email address or telephone number, is private and confidential.

CFRI does not sell or share our constituents’ personal contact information with any outside organization or individual unless you have given us permission to do so in writing. CFRI uses our constituents’ contact information to process donations, fulfill requests for information, send email/physical mail donation request letters, e-newsletters, action alerts, miscellaneous correspondence, organizational information surveys and evaluations, and event/program information.

The information you provide is stored in a secure location and is accessible only by designated staff. Our donor database is password protected and accessible only by designated staff. Online donation information is protected by Blackbaud, our donor database software system. To access Blackbaud Merchant Services’ privacy policy statement:

If at any time you would like to correct your personal information, or remove your name from CFRI’s mailing list, please contact us:

Email or call 855.237.4667 (toll free)


All information provided on this site is general in nature. Do not rely upon any of the information for medical diagnosis or treatment. Please consult your primary health care provider if you have questions or concerns about any medical issues or conditions. Appearance of link sites and sponsors on the CFRI or related web pages does not imply endorsement by Cystic Fibrosis Research, Inc. (CFRI). CFRI and the authors of the information contained here cannot be held responsible for any damage resulting from use of any information that is found on this web site.



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