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Cystic Fibrosis Research, Inc. Privacy Policy

At Cystic Fibrosis Research, Inc. (CFRI) your personal information, such as your name, postal and e-mail address or telephone number, is private and confidential. CFRI does not sell or distribute our mailing lists. The information you provide is stored in a secure location and is accessible only by designated staff.

If you indicate that you would like to receive information about other CFRI programs or membership, your personal information will be added to that appropriate CFRI mailing list. If at any time you would like to correct your personal information or remove your name from CFRI’s mailing list, please contact us at:

e-mail or

call 650.404.9975, or

write to:
Carroll Jenkins
2672 Bayshore Parkway, Suite 520
Mountain View, CA 94043


All information provided on this site is general in nature. Do not rely upon any of the information for medical diagnosis or treatment. Please consult your primary health care provider if you have questions or concerns about any medical issues or conditions. Appearance of link sites and sponsors on the CFRI or related web pages does not imply endorsement by Cystic Fibrosis Research, Inc. (CFRI). CFRI and the authors of the information contained here cannot be held responsible for any damage resulting from use of any information that is found on this web site.
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