Past Events

CFRI hosts a General Membership Meeting twice a year, an annual National Cystic Fibrosis Family Education Conference and an Annual Teen and Adult CF Day Retreat. These events are covered in our newsletters and are filmed for DVDs.

Each event is supported by renowned speakers from different fields of CF expertise.

Researchers gathered together at the 2009 22nd National CFRI conference, The Power of New Possibilities. Click here for a short interview at the conference.

In addition, our volunteers film the Stanford CF Education Day, and other occasional events.

To order DVDs or to read an overview of past conferences, select a link below.

• CFRI 22nd Annual Education Conference
  "The Power of New Possibilities"
  July 31 - Aug. 2, 2009
  Order Form
• CFRI General Membership Meeting
  The Genetics of Cystic Fibrosis
  Guest Speaker: Anabel Stenzel
  May 27 2009
  Order Form
• Stanford Hospital
  Lucile Packard Children's Hospital
  9th Annual CF Education Day
  March 7, 2009
  Order Form
• CFRI General Membership Meeting
  "Who Should Consider Special Needs Trusts?"
  Guest Speaker: Michael Gilfix, Esq.
  May 28, 2008
  Order Form

To see photos from the 2009 retreat, click here.

For an inside look at past retreats, click here.

 

For the CF Journey

I have been attending CFRI's camps and retreats for over 15 years. CFRI is one of the only organizations in the country that values the benefits of people with CF gathering together to support each other. Their strict protocols for hygiene and safety regarding cross-infection make this possible.

At Retreat we learn about new treatments, coping skills, and medical aspects of our illness. We enjoy delicious and nutritious meals, exercise activities, and creative art experiences. Most importantly, we explore how CF affects our lives, relationships, and emotional development. At Retreat, I laugh more than any other time during the year, but can also grieve and remember those friends with CF whom I have lost.

I leave Retreat feeling like I have charged my batteries to face the world with hope and confidence. The CFRI community at Retreat are like family. I am extremely grateful to CFRI for sponsoring this event.

Anabel Stenzel,
Adult with CF