CFRI publishes CFRI Community, a newsletter about the CF research projects we fund and current topics of interest to the CF community. These include summaries of key presentations made at our annual National Cystic Fibrosis Family Education Conference. You may select a specific issue below or to receive each newsletter via email.
We are grateful to Chiesi USA, Genentech, Boomer Esaison Foundation, and Vertex Pharmaceuticals for their generous support of our newsletter, CFRI Community, this year.
The Importance of Education
I have been meaning to e-mail you since Claire started Kindergarten to let you know how helpful the CFRI booklet "Cystic Fibrosis in the Classroom" was for us. I gave a copy to her teacher, the school principal, the school nurse, and the district nurse to read before we met to set up her 504 plan. I also used a folder I received from the last CFRI conference by Lisa Yourman on what to put in a 504 plan. It was a great help to have the resources to guide me through the process. Setting up her 504 plan went without a hitch! Claire's teacher, school administrators, and nurses were extraordinarily kind and have been willing to help us in any possible way. Thanks so much for all the great work you do at CFRI. Having resources like this makes such a tremendous difference, and I really appreciate all you do.
Lou Ann Alexander
Parent of Child with CF