CFRI was recently honored with a visit by Evgueni V. Savitski, product manager of Medintorg Company, a pharmaceutical distribution company for Solvay, Knoll and Glaxo Pharmaceuticals in Moscow. He is also the Deputy Director of The Charity Center for Disabled Children in Russia, a nonprofit company whose mission is to educate disabled children and their families about their illnesses (he has 950 registered people in his data base who have cystic fibrosis and live in the Russian Republic) and deliver medications throughout Russia to patients without access to the medicines they need. The Center for Citizen Initiatives in San Francisco, California, sponsored the one-month visit. Their mission is to match nonprofit businesses in Russia with U.S. businesses in the same field and with similar goals. During his stay Evgueni was also able to visit with Dr. Karen Hardy and her team at Cal Pacific Medical Center in San Francisco, Dr. Richard Moss and colleagues at Packard Children's Hospital at Stanford and Dr. Jeff Wine, Director of the Cystic Fibrosis Research Lab at Stanford University.
Evgueni is married and has a seven-year-old daughter, Marina (see photo), who has cystic fibrosis. Unable to get the proper medications for her care when she was first diagnosed, Evgueni, who is trained as a mining engineer, went to work in the pharmaceutical industry with the ultimate goal of creating pathways to get proper medications into the hands of the children who need them. He continues to realize this dream through The Charity Center for Disabled Children. In fact, he has been instrumental in making enzymes available for all CF children and adults in Russia. He continues to educate children and adults with cystic fibrosis (and other diseases), their parents and their doctors about what they need to do to keep themselves healthy. Then he works with the pharmaceutical companies to provide their medications to health clinics, patients and organizations all over Russia.
While he was here, Evgueni studied how CFRI worked, how we provide information to our members, how we are able to fund research, what methods of treatment for CF patients have recently become available, and any new means for securing medications for treating patients with CF who live in Russia. He will bring this information back to The Charity Center for Disabled Children and make it available to the children and young adults with CF in Russia.
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