Videotapes Available from Past Events

All tapes are $6.00 (unless otherwise noted). This includes shipping and handling, and is payable in advance. Tapes are mailed standard mail delivery. Please allow 4-6 weeks.

Mail your check payable to CFRI. Be sure you note which tapes you want and the quantity. Include your mailing address. You may also print and use the following order form for the 2003 conference.

2003 - 16th Annual Educational Conference
Tape 1
The Relationship Between Psychosocial Issues and Nutritional Status Rebecca Bathon,MSW44 minutes
CF: Living it, Researching It and Where We Are Now Paul Quinton, PhD.55 minutes
Tape 2
Antibiotic Treatment of Lung Disease in CF Lisa Saiman, MD56 minutes
CF and Life Adjustments: Coping With Whatever Comes Rev. Alice Zulli54 minutes
Tape 3
Challenges of End Stage and Loss - Panel Discussion Rev. Alice Zulli, moderator57 minutes
CF in the Classroom Linda LeNoir, RN
Jeannie Kane, MA		60 minutes
Tape 4
Exercize As A Form of Airway Clearance Randah Whitley, PT44 minutes
Inhaled Glutathione As A Potential CF Therapy Clark Bishop, MD
Valerie Hudson, PhD		62 minutes
Tape 5
Gene Therapy Research: How Close are We? Richard Moss, MD56 minutes ($4.00)
Tape 6
The Endocrine System in Patients with CF:
Updates in CF-Related Diabetes, Growth and Development and Osteoporosis		 Judy Kalinvak, MD52 minutes ($4.00)
Tape 7
Compliance: Choices and Consequences - Parents/CF Adult Panel Discussion Hatsuko Arima, LCSW, Moderator79 minutes ($4.00)

2003 Stanford CF Center Education Day Tape 1
Introductions Noreen Henig, MD
Eating Behaviors in Infants and Toddlers Julie Matel, RD
GI-Related Issues: Reflux and DIOS in CF Manuel Garcia, MD
Update on Gene Therapy Zoe Davies, PNP
Legal Rights of Patients and Their Families Beth Sufian, JD

2003 Stanford CF Center Education Day Tape 2
Current and Upcoming Clinical Trials at Stanford Colleen Dunn, RCP
Azithromycin Use in CF Carol Conrad, MD
Factors Affecting Adherence with Medical Treatment in CF Denise Angst, DNSC
Coping with CF and Depression Jose Maldanado, MD


  • Nov. 8, 2001 CFRI General Meeting Panel Discussion “The Internet and CF Care”
    Rod Conlu, Phyllis Gardner, MD, Donald Livsey, Scott Wakefield, Robert Wright & Margaret Delano, MD.

  • 2001 CFRI  Conference Videotapes: Tape 1
    CF Clinical Update
    Frank Accurso, MD, Denver Children’s Hospital     		(52m)
    CF Cross Infection Issues
    Michael J. Rock, MD, CF Center Director, University of WI     		(52m)
    Q&A
    Accurso, Rock, Daina Kalnins, RD, Toronto
    Dana Hardin, MD University of Texas     		(52m)
  • 2001 CFRI  Conference Videotapes: Tape 2 "Other issues in CF"
    Nutritional Approaches
    Daina Kalnins, RD, Toronto Hospital for Sick Children     		(58m)
    CF-Related Diabetes & Osteopenia
    Dana Hardin, MD, University of Texas     		(54m)
  • 2001 CFRI  Conference Videotapes: Tape 3 "CF in the Lungs"
    What is Wrong with CF Airway Secretions?
    Tomas Ganz, MD, PhD, UCLA     		(37m)
    Pulmozyme & CT Scanning
    Terry Robinson, MD, Stanford     		(53m)
    Tobi: Development of a 2nd Generation Delivery System
    Pete Challoner, PhD, Chiron Corp     		(25m)
  • 2001 CFRI  Conference Videotapes: Tape 4 "Research"
    Minorities Mutations
    M. Kharrazi, PhD, CA Dept. of Health Svc     		(41m)
    Basic CF Research Overview
    Tomas Ganz, MD, PhD, UCLA     		(52m)
    CFRI Fellows
    Jonathan Widdicombe, PhD, Children's Hospital Oakland Research Inst.     		(62m)
  • 2001 CFRI  Conference Videotapes: Tape 5 "Advanced Stages of CF"
    Organ Donor Shortage: What You Need to Know
    Lisa Solinger, CA Transplant Donor Network     		(45m)
    End of Life Issues in CF
    Walter M. Robinson, MD     		(56m)
  • 2001 CFRI  Conference Videotapes: Tape 6 "Panel Discussions"
    Teen Panel Discusssion
    Joseph Batchelder, Daniel Hendricks, Michelle Jones,
    Christinia Miller, Anna Modlin & Joseph Yerves     		(73m)
    Parent Panel Discussion --from the 2000 CFRI Conference--
    Danny Altano, Lisa Guiliano, Jill Miller, Chuck Nelson
    and Beverly Sufian     		(90m)
  • 2001 CFRI  Conference Videotapes: Tape 7 "Impact of CF"
    --As CFRI 2001 Tape 7 is somewhat technical, we recommend it more for those working in the helping professions than for laypeople.--
    Impact on Family and How to Cope
    Myra Bluebond-Langner, PhD, Rutgers University     		(53m)
    Emotional Impact of CF --from the 2000 CFRI Conference--
    Ann Steiner, PhD     		(54m)
  • May, 2001 CFRI General Meeting
    Danish Protocol on Agressive IV Antibiotic Treatment
    Dr. Niels Hoiby, National University Hospital in Denmark     		(70m)
  • 2000 CFRI  Conference Videotapes:

Tape 1 - 
CF Overview: Jeff Wine, Ph.D.
Legal Strategies: Beth Sufian, J.D.
IEP's & 504's: Beth Sufian, J.D. and Jeanne Kane
Tape 2 - 
Swedish Protocol for CF: Birgitta Strandvik, M.D., Ph.D.
Doctors' Panel: Richard Moss, M.D. (Ped. CF), Birgitta Strandvik, M.D., Ph.D. (CF M.D. from Sweden), Kenneth Cox, M.D. (GI), and Victoria King, M.D. (ENT)
Tape 3 - 
Parents' Panel: Danny Altano, Lisa Giuliano, Jill Miller, Charles Nelson, and Beverly Sufian (all parents of CF children).
Managing Living with CF: Robyn Petras (adult with CF)
Tape 4 - 
Emotional Impact of CF: Ann Steiner, Ph.D., M.F.T.
Spirituality & Health: Fred Luskin, Ph.D.
What I Want Every Patient to Know: Ruben Diaz, M.D.
Tape 5 - 
Sinus Treatments for Patients with CF: Victoria King, M.D. (ENT)
Liver Issues for Patients with CF: Kenneth Cox, M.D. (G.I)
Ask the Pharmacist: Lois Adams, CR.Ph.,MBA
Tape 6 - 
(very technical material):
GSH Research Update: Rabin Tirouvanziam, Ph.D.
New Drugs/Inologic (Trojan Horse): Alexis Traynor-Kaplan, Ph.D.
Post Doctoral Fellowship Program: Jonathan Widdicombe and
Post-Doctoral Fellows

  • CF Education Day organized by the CF Center at Packard Children's/Stanford Hospital on March 31st, 2001. Each $6.00 or both for $12.00.

    Tape 1 includes: Rick Moss, M.D., "An Approach to New CF Therapies," Holly Pegg, P.N.P., R.N., "How to Use the CF Center," Terry Robinson, M.D., "How to Interpret Diagnostic Tests," Julie Matel, R.D., "DHA-Hype and Hope," Judy Kalinyak, M.D., "Cystic Fibrosis Related Diabetes Mellitus," and Kristin Shelton, R.R.T., "Airway Clearance: Something for Everyone."
    Tape 2 includes: An Introduction to the Research Team, Noreen Henig, M.D., "CF and Lung Transplantation," Mary Helmers, R.N., "Growing Up: Transitioning to the Adult Program," Joanne Asano, C.S.W., "Taking Advantage of Your Social Worker," Carol Conrad, M.D., "Infection Control," Kenneth Cox, M.D., "CF Related Liver Disease," and Jeff Wine, Ph.D., "CF Research, Where are We Going?" and a final Question and Answer Panel.
     
  • October 25, 2000 General Membership Meeting Videotape:
    John Patton from Inhale Therapeutic Systems, Inc. San Carlos, CA talking about New Ways to Take Inhaled Drugs