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May is National Cystic Fibrosis Awareness Month!

bus sign 2008

Cystic Fibrosis Awareness Month signs on SAMTRANS & CALTRAIN

Cystic Fibrosis Research, Inc. exists to fund research, to provide educational and personal support, and to spread awareness of cystic fibrosis, a life-threatening genetic disease.

33 Years of CF Research, Education and Support

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Federal ID 51-0169988




Cystic Fibrosis Research, Inc. (CFRI)
General Membership Meeting
Wednesday, May 28, 2008 7pm
Lucile Packard Children's Hospital Auditorium

Who Should Consider Special Needs Trust?

Michael Gilfix

Featured speaker, Michael Gilfix, Esq., an experienced attorney and nationally known authority specializing in Special Needs Trusts. Presentation begins 8:00-8:50pm, followed by
Questions and Answers.
(Click Here)

 




ANNOUNCING:

Counseling and Psychotherapy Services for the CF Community
The Doors Are Open to ALL in the Bay Area*


New Horizons


       The Transpersonal Counseling Center in Palo Alto, California is offering counseling and psychotherapy services to those who are part of the cystic fibrosis community.

  • This program is designed specifically for those impacted by cystic fibrosis, including patients, families, caregivers, and clinical staff. It can help address stress, grief, anger, communication issues, time management and other psychological, social and spiritual aspects of dealing with cystic fibrosis.
  • Psychotherapists work with adults, adolescents, children, families and couples.
  • The fee is set on a sliding scale based on income. No one will be turned away for lack of financial resources. 
  • *A protocol for safety regarding cross-infection has been fully developed and implemented. This is similar to the protocol used at the CFRI Conference and Day Retreat. While those with Burkholderia cepacia, MSRA and pan-resistance to antibiotics will not be seen at the Center, telephone counseling IS available.  

Services will be provided at the Transpersonal Counseling Center
1069 East Meadow Circle, Palo Alto, CA.
For more information, visit their website:

http://www.itp.edu/resources/counselservices.cfm

To make an appointment for a private consultation, please call the
Transpersonal Counseling Center directly at: (650) 493-5006 ext. 224.

This unique program is made possible by the
Cystic Fibrosis Quality of Life Program: A Living Legacy of Peter Judge, (PDF)
a collaborative effort of  Cystic Fibrosis Research, Inc, the Institute of Transpersonal Psychology,
and The Center for Education in Family and Community Medicine at Stanford University.

 

 

 

 

 

 

Pearl on oyster bed





Palm Tree

 

Mark Your Calendars !

August 1-3, 2008 - CFRI 21st Annual Education Conference "Living a Medical Miracle: CF Today and Tomorrow" at the Sofitel San Francisco Bay, Redwood City, California.

  1. Conference Flyer - PDF
  2. Conference Schedule & Registration - PDF
  3. Video Release - PDF
  4. Medical Release - PDF
  5. Cross Infection Release - PDF
  6. Scholarship Application - PDF
  7. Volunteer & Professional of the Year Nominations - PDF
  8. String of Pearls Photograph Exhibit (Request for photos) - PDF
  9. Sofitel Reservations

August 3-8, 2008 - CFRI Teen & Adult Day Retreat "CF Club Med: A Retreat of a Lifetime " at Vallombrosa Conference Center, Menlo Park, California.

  1. Retreat Flyer - PDF
  2. Retreat Brochure - PDF
  3. Retreat Packet - PDF

August 4, 2008 - 24th CFRI Benefit Golf Tournament at Cinnabar Hills, San Jose, California.

 

 

 

 

CFRI Wine Club

CFRI is pleased to work with Chateau Marie Antoinette Winery of Morgan Hill to bring our community award-winning quality premium varietals from Monterey County that are affordable.

Call Darrell at 650.404.9978 for information.

 

 



 

CFRI Spring 2008 Newsletter is Here!

Stay in touch with the latest in CF research developments and other topics of interest.


 

 
Visit Our Friends!
 

 

 

Heroes of Hope

 


Cystic Fibrosis Dot Com

 

6500 RedRoses

Maggie Faye


For our CF community in California, please note the website of the
Genetically Handicapped Persons Program (GHPP) has been updated!

Visit their website to find further information of their services and benefits.

 

Student

Cystic Fibrosis in the Classroom Publications

CFRI is pleased to announce that 
Cystic Fibrosis in the Classroom
is available to our CF community
in English and Spanish versions.

We hope this will be an important resource for
all who have children that are attending school, 
teachers, nurses and school administrators. 
For hard copies, contact us at
(650) 404-9975 or cfri@cfri.org.

CF in the Classroom (English) - PDF
CF in the Classroom (Spanish) - PDF

   

 

Stanford CF Education Day - March 15, 2008
Educational DVD's and CD's


CDs and DVDs

Individual presentations are available in
both DVD and CD-ROM formats.

To order, please proceed to order form.

 

 

 
Power of Two book

A Book for the Journey:

The Power of Two:
A Twin Triumph Over Cystic Fibrosis

By
Isabel Stenzel Byrnes and Anabel Stenzel

For book signing dates and more information visit http://www.stenzeltwins.com/

 

4 stars

At Cystic Fibrosis Research, Inc., your research dollars are spent wisely.

CFRI has just recently received the coveted
4-Star Rating from Charity Navigator.

Visit Charity Navigator to see
how CFRI compares with other charities.

We are also listed in Guidestar, another premium charity evaluator:

Guide Star

We thank all our donors and volunteers for your generous support!

 

 
GoodSearch: You Search...We Give!
 
       

 


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