CFRI produces educational events that update the CF community with new information and support patients and caregivers with practical advice on maintaining optimal health with cystic fibrosis.
CFRI’s National Family Cystic Fibrosis Education Conference is held each summer in Redwood City, California. Our conference brings together adults with cystic fibrosis, caregivers, experts and researchers for three days where a variety of cystic fibrosis topics are explored through presentations, panel discussions and support groups. It is an interactive and informative experience for all participants.
Our Teen and Adult Retreat is for those with cystic fibrosis and significant supporters is held each August in Menlo Park, California. The program includes lectures, rap sessions, physical activities, arts & crafts and fun in a safe environment.
The CF Discovery SeriesTM is an informative and engaging program designed to educate and uplift those with cystic fibrosis. Through interactive presentations with experts in the field, those living with cystic fibrosis gain information in a setting which encourages camaraderie and community. You can attend these events in person, or you can view presentations and ask your questions online via CFRIlive! To view past recordings, click here.
General Membership Meeting
Our annual General Membership Meeting, held in May each year, provides the opportunity for members to participate in CFRI business planning and to benefit from educational and topical speakers. These presentations cover a wide range of diverse topics which include: medical and pipeline updates, the genetics of cystic fibrosis, insurance issues and special needs trusts. To view this year's presentation, click here.
CFRI regularly participates in education days at other institutions. We alert our readers to local and national events that are of educational value for our cystic fibrosis community.
Questions? Please contact us: cfri@CFRI.org or 650.404.9975.
For the CF Journey
I have been attending CFRI's camps and retreats for over 15 years. CFRI is one of the only organizations in the country that values the benefits of people with CF gathering together to support each other. Their strict protocols for hygiene and safety regarding cross-infection make this possible.
Adult with CF