CFRI 28th National Cystic Fibrosis Family Education Conference
"Partners in Progress"
Friday, July 31 - Sunday, August 2, 2015
Sofitel San Francisco Bay, Redwood City, CA
CFRI's annual Cystic Fibrosis Family Education Conference brings together experts in the field of cystic fibrosis (CF) to provide the latest updates in research and care to our diverse CF community. For a schedule of topics and speakers, click here.
The Early Bird registration fee ($180 per person) is available through 6/30/15 and a special discount rate ($113 per night) at Sofitel San Francisco Bay is guaranteed through 7/8/2015.
Register now! Click here.
Dr. Thomas Keens of Children’s Hospital Los Angeles (CHLA) is hosting the live streaming of presentations from our 28th National Cystic Fibrosis Family Education Conference on Saturday, August 1, to make this valuable information available to those who cannot travel to Northern California. This is open to families from all Southern California CF centers! Streamed to the John Stauffer Conference Room at CHLA, participants can ask their questions in real time. The cost is only $25, and lunch will be provided. To register, click here.
CFRI 40th Anniversary Gala ~ "A Magical Evening at Carolands"
Friday, September 25, 2015 7:00 - 10:00 pm
Few settings in California are as breathtaking as the historic and exclusive Carolands chateau in Hillsborough, which has been restored to its original state of grandeur. Those in attendance at "A Magical Evening at Carolands" will celebrate four decades of progress in cystic fibrosis (CF) research, while enjoying gourmet small plates, delectable desserts, fabulous entertainment, and fine wine. For more details, click here.
The evening will culminate with an exciting live auction. This soirée will raise vital funds for CFRI’s research and education programs. Please join us at this extraordinary event, and help us to find a cure for those coping with CF, the most common fatal genetic disease in the U.S. For sponsorship opportunities, click here.
Buy your tickets today! Click here.
CFRI's Summer Retreat
August 2 - 9, 2015
Vallombrosa Center, Menlo Park, CA
CFRI's Summer Retreat provides a safe and welcoming environment aimed at enhancing positive coping skills,
social support and education for people who share common experiences with CF. Adults with CF, as well as their family members and friends, are encouraged to register. Using educational seminars, art workshops and daily exercise sessions such as Pound® and yoga, the CF Summer Retreat helps adults expand their healing toolbox beyond the day-to-day medical regimen. To read about the retreat from past participants, click here.
CFRI is a pioneer in creating safe places for CF patients to socialize by following a strict cross infection control policy. For the safety of participants, all retreat attendees must be at least 18 years old. All attendees with cystic fibrosis must complete a sputum culture after June 19, 2015, and must submit CFRI’s Medical Release Form and Cross-Infection Liability Release Form to CFRI‘s office by July 29, 2015 before attending the retreat. Please download forms at http://www.cfri.org/pdf/releaseforms.pdf.
The cost to attend is $85 for the full week, or $15/day, including all activities and meals. Accommodations are available at Vallombrosa for only $55 per participant/night. For those in need, an option to apply for a scholarship is available on the registration page. The Retreat is generously sponsored by Genentech and Gilead Sciences.
Register early! Click here.
CF Golf Tournament at Pasatiempo
Monday, August 3, 2015
Pasatiempo Golf Club, Santa Cruz
Join supporters at this award-winning Alister MacKenzie-designed course for
a fun day of golf. This event will include a round of golf with cart, delicious lunch, wine reception, silent and live auctions, and a celebration banquet. Enjoy a wonderful day with friends, delicious food and spectacular views, all for a great cause. To inquire about sponsorship opportunities, please contact Scott Hoyt at firstname.lastname@example.org
Register early! Click here.