Events

CFRI produces educational events that update the CF community with new information and support patients and caregivers with practical advice on maintaining optimal health with CF.

Each year, we host the National CF Family Education Conference, a three-day event for adults with cystic fibrosis and caregivers to meet experts and learn about a variety of CF topics.

In addition, we produce a week-long Day Retreat for teens and adults with CF and significant supporters. Our schedule includes lectures, rap sessions, physical activities, arts & crafts and fun in a safe environment.

We engage speakers twice a year at our General Membership meetings. Their presentations cover a wide range of diverse topics which include: medical and pipeline updates, the genetics of CF, insurance issues and special needs trusts.

CFRI participates in education days at other institutions. We alert our readers to local and national events that are of educational value for our CF community.

Questions? Please contact us: cfri

CFRI.org or 650.404.9975.

For the CF Journey

I have been attending CFRI's camps and retreats for over 15 years. CFRI is one of the only organizations in the country that values the benefits of people with CF gathering together to support each other. Their strict protocols for hygiene and safety regarding cross-infection make this possible.

At Retreat we learn about new treatments, coping skills, and medical aspects of our illness. We enjoy delicious and nutritious meals, exercise activities, and creative art experiences. Most importantly, we explore how CF affects our lives, relationships, and emotional development. At Retreat, I laugh more than any other time during the year, but can also grieve and remember those friends with CF whom I have lost.

I leave Retreat feeling like I have charged my batteries to face the world with hope and confidence. The CFRI community at Retreat are like family. I am extremely grateful to CFRI for sponsoring this event.

Anabel Stenzel,
Adult with CF