CFRI produces educational events that update the CF community with new information and support patients and caregivers with practical advice on maintaining optimal health with cystic fibrosis.
CFRI’s National Family Cystic Fibrosis Education Conference is held each summer in Redwood City, California. Our conference brings together adults with cystic fibrosis, caregivers, experts and researchers for three days where a variety of cystic fibrosis topics are explored through presentations, panel discussions and support groups. It is an interactive and informative experience for all participants. Save the dates (July 31 - August 2, 2015) and stay tuned for details!
Our Teen and Adult Retreat is for those with cystic fibrosis and significant supporters is held each August in Menlo Park, California. The program includes lectures, rap sessions, physical activities, arts & crafts and fun in a safe environment. Save the dates (August 2 - August 9, 2015) and stay tuned for details!
CF Discovery Series
The CF Discovery SeriesTM is an informative and engaging program designed to educate and uplift those with cystic fibrosis. Through interactive presentations with experts in the field, those living with cystic fibrosis gain information in a setting which encourages camaraderie and community. You can attend these events in person. Guests attending in person must follow CFRI's Infection Control Policy. You can also view presentations and ask your questions online via CFRIlive! For more information, click here.
For the CF Journey
To Kriss's Community,
The events at Retreat were fun, including wiffleball, volleyball, U-jams and paddling. Everyone was able to adapt each activity without feeling judged or defeated, and I enjoyed every endeavor I attempted. I also really appreciated the formal talks at Retreat. I learned more about sputum cultures and the lab, CF medications, exercise tips, and CF nutrition. In the small group setting, these talks gave a rare opportunity to ask questions and really get to know our experts. Our support groups, called “raps,” were a rare chance to hear how others fighting CF cope, survive, and triumph. I must add that my fears of cross-infection were quickly assuaged, based on CFRI’s stringent protocols.
It is difficult to capture with words the relief that this environment brought me. In this short week, I truly believe I made friends for a lifetime, and will never have to wonder where to find someone who truly understands.Kristina Benson
Adult with CF