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Education

CFRI provides vital educational resources to a diverse CF community, including conferences, speakers series, bilingual DVDs, and informational publications.

  • SAVE THE DATE: CFRI’s 30th NATIONAL CF FAMILY EDUCATION CONFERENCE JULY 28 – JULY 30, 2017! It is our 30th conference anniversary, and this will be a very special year. As always, we have a stellar line up of presenters, including John Clancy, MD, Kristin Riekert, PhD, Karen Von Berg, DPT, John Mark, MD, and Paul Quinton, PhD. We will have fantastic receptions, an awards banquet, and even a celebratory dance party! Our nationally renowned conference will be held at Pullman San Francisco Bay (formerly Sofitel San Francisco Bay). For details, and to register, click here.

  • The CF Discovery Series presents interactive sessions on a variety of vital CF topics. Accessible to the global CF community, presentations are livestreamed, and available on CFRI’s website. Stay tuned for details about upcoming events!

    To watch online, go to
    http://www.ustream.tv/channel/cfri-live-cf-discovery-series
    .








The Importance of Education

I have been meaning to e-mail you since Claire started Kindergarten to let you know how helpful the CFRI booklet "Cystic Fibrosis in the Classroom" was for us. I gave a copy to her teacher, the school principal, the school nurse, and the district nurse to read before we met to set up her 504 plan. I also used a folder I received from the last CFRI conference by Lisa Yourman on what to put in a 504 plan. It was a great help to have the resources to guide me through the process. Setting up her 504 plan went without a hitch! Claire's teacher, school administrators, and nurses were extraordinarily kind and have been willing to help us in any possible way. Thanks so much for all the great work you do at CFRI. Having resources like this makes such a tremendous difference, and I really appreciate all you do.

Lou Ann Alexander
Parent of Child with CF
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