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CFRI provides vital educational resources to a diverse CF community, including conferences, speakers series, bilingual DVDs, and informational publications.

  • CFRI’s annual National Cystic Fibrosis Family Education Conference brings together those impacted by CF – including patients, families, care teams, and scientists – with experts in the field of CF for a weekend of information and support. CFRI's 31st National Cystic Fibrosis Family Education Conference is scheduled from August 3, 2018 to August 5, 2018 at Sofitel San Francisco Bay. Please save the dates and stay tuned for details!

  • "CFRI Community," CFRI’s newsletter, is delivered to 15,000 addresses across the globe four times per year; the Spanish-language edition, "CFRI Comunidad," is distributed twice annually. To download copies of our newsletter, click here. To receive news updates by mail or email, click here.

The Importance of Education

I have been meaning to e-mail you since Claire started Kindergarten to let you know how helpful the CFRI booklet "Cystic Fibrosis in the Classroom" was for us. I gave a copy to her teacher, the school principal, the school nurse, and the district nurse to read before we met to set up her 504 plan. I also used a folder I received from the last CFRI conference by Lisa Yourman on what to put in a 504 plan. It was a great help to have the resources to guide me through the process. Setting up her 504 plan went without a hitch! Claire's teacher, school administrators, and nurses were extraordinarily kind and have been willing to help us in any possible way. Thanks so much for all the great work you do at CFRI. Having resources like this makes such a tremendous difference, and I really appreciate all you do.

Lou Ann Alexander
Parent of Child with CF
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