Educational Publications
Cystic Fibrosis in the Classroom
CFRI is pleased to announce that Cystic Fibrosis in the Classroom publications are available to our CF community in English and Spanish. This is an important resource for all who have children attending school, teachers, nurses and school administrators.
CF in the Classroom - English version (PDF)
To request hard copies, contact us at
650.404.9975 or
click here.
CF in the Classroom - Spanish version ( PDF)
To request hard copies, contact us at
650.404.9975 or click here.
Cystic Fibrosis Website Guide
This guide contains a listing of website addresses for various resources, such as
CF support organizations, patient assistance programs, and basic CF information.
Click on the photo below to see contents.
To request hard copies, contact us at
650.404.9975 or click here.
Educational DVDs / CDs
The following presentations are available in DVD or CD formats:
Reproductive Issues for Women with CF
CFRI’s General Membership Meeting
Lucile Packard Children’s Hospital Auditorium
May 26, 2010
Click here for an order form.
Stanford’s CF Education Day
Lucile Packard Children’s Hospital
March 13, 2010
Click here for an order form.
CFRI's 22nd Annual Education Conference
"The Power of New Possibilities"
July 31 - Aug. 2, 2009
Click here for an order form.
Stanford Hospital
Lucile Packard Children's Hospital
9th Annual CF Education Day
March 7, 2009
Click here for an order form.
Elizabeth Nash Memorial Fellowship Publications 2001-2008
Click here for an order form.
An Update on Stem Cell Research and Cystic Fibrosis
CFRI General Membership Meeting
October 22, 2008
Click here for an order form. |
The Importance of Education
I have been meaning to e-mail you since Claire started Kindergarten to let you know how helpful the CFRI booklet "Cystic Fibrosis in the Classroom" was for us. I gave a copy to her teacher, the school principal, the school nurse, and the district nurse to read before we met to set up her 504 plan. I also used a folder I received from the last CFRI conference by Lisa Yourman on what to put in a 504 plan. It was a great help to have the resources to guide me through the process. Setting up her 504 plan went without a hitch! Claire's teacher, school administrators, and nurses were extraordinarily kind and have been willing to help us in any possible way. Thanks so much for all the great work you do at CFRI. Having resources like this makes such a tremendous difference, and I really appreciate all you do.
Lou Ann Alexander
Parent of Child with CF
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