CFRI's 27th National Cystic Fibrosis Family Education Conference
brings together experts in the field of cystic fibrosis (CF) to provide the
latest updates in research and care to our diverse CF community.
Download a copy of the registration form, which includes a schedule and list of speakers:
Listen to others talk about their conference experience:
Watch a past conference video clip by CFvoice:
Topics / Speakers:
A Resilient Character: Adapting Well in Changes to Our CF
Isabel Stenzel Byrnes, MPH, MSW
San Francisco Bay Area
The Ouch Factor: Pain Management in CF
Stephen Jones, PNP
Children's Hospital -- Albany Medical Center
Albany, New York
Where We Have Been and Where We Are Going
Thomas G. Keens, MD
Children's Hospital Los Angeles
Los Angeles, California
Reflections on Detection of CF and
CFTR-Related Metabolic Syndrome (CRMS)
in California Newborn Screening
Martin Kharrazi, PhD
California Department of Public Health
The Sweet Evolution of CF-Related Diabetes (CFRD)
Antoinette Moran, MD
University of Minnesota Amplatz Children's Hospital
More than Survival: A Pursuit of Happiness
Mary Elizabeth Peters
Theatre Artist & CF Educator
The Therapeutic Pipeline: CF Research Updates
Ahmet Uluer, MD, DO
Boston Children's Hospital
CF and Cancer: Who Should Be Concerned and What Can Be Done
Katherine Van Loon, MD
University of California San Francisco Medical Center
San Francisco, California
CFRI-Funded Research Update
CFRI-funded researchers from various institutions
"Tips for Living an Extraordinary Life" Panel Discussion and Q & A
Adults with CF
“Ask the Experts” Panel Discussion and Q & A
3-day Registration - $215 per person
2-day Registration - $175 per person
1-day Registration - $100 per person
To ensure good health for all, please use proper hygiene practices.
All participants/guests with CF must comply with
CFRI’s Infection Control Guidelines. If you have cystic fibrosis,
you must complete a sputum culture after June 20, 2014 and
submit Release Forms to CFRI's office by July 30, 2014.
Sofitel San Francisco Bay, a four-star hotel, is offering a special rate of
$111 per night for a limited number of rooms.
Please make your reservations early!
To make reservations at Sofitel,
call CFRI at (650) 404-9975 between 9:00 a.m. and 5:00 p.m. (PST)
To apply for a scholarship, you must submit a $25 non-refundable
processing fee. If your application is approved, the scholarship will
cover the cost of your conference registration fee, which includes meals.
If you are not awarded a scholarship and still plan to attend the conference,
you may apply your payment of $25 towards the conference registration fee.
Thank you to the generous sponsors that make this conference possible.
Genentech • Novartis • Vertex • Cheisi USA Inc.
Boomer Esiason Foundation • AbbVie •Gilead Sciences
If you have any questions, contact us toll free at
1.855.cfri.now (1.855.237.4669) or firstname.lastname@example.org
We hope to see you at the conference!