CFRI 26th National Cystic Fibrosis
Family Education Conference
"Getting in Tune with CF Today:
Latest Research and Best Practices"
|August 2 - August 4, 2013
Sofitel San Francisco Bay
Redwood City, CA
CFRI's annual education conference supports families, adults with CF, health providers and caregivers. Clinicians, researchers and therapists bring their expertise from across the country and abroad.
For more information, and to register now, click here.
To hear testimonials, click here.
To watch video clips by CFVoice, click here.
|CFRI's Teen and Adult Retreat:
"A Party of a Lifetime!"
August 11 - 16, 2013
Vallombrosa Center, Menlo Park, CA
CFRI's Annual Teen and Adult Retreat provides a safe and welcoming environment aimed at enhancing positive coping skills, social support and education for people who share common experiences with CF. Adults and teens 15 years and older with cystic fibrosis, as well as their family members, friends, and health care providers can register.
This year's theme is CFRI's Teen and Adult Retreat: "A Party of a Lifetime!" Activities promoting health include daily exercise, arts and crafts, rap sessions, and educational workshops with guest speakers. Fun group-bonding activities include a talent show, games, and getting to know each other.
All people with CF are required to comply with cross-infection behavioral precautions. Participants with CF must obtain a sputum culture before the start of the Retreat.
To get a personal inside look about what the Retreat offers, click here.
To watch a video from last year's Retreat, click here.
To receive updates on Facebook, please email your request to email@example.com.
To support the Retreat with a tax-deductible donation, click here.
Monday, August 5, 2013
CF Golf Tournament at Pasatiempo
Pasatiempo Golf Club, Santa Cruz
Please join supporters at this award-winning Alister MacKenzie-designed course for a great day of golf!
This event, which benefits CFRI, will include a round of golf with cart, delicious lunch, wine reception, silent and live auctions, and a celebration banquet. Enjoy a wonderful day with friends, great food and spectacular views - all for a good cause!
To register to play, or to inquire about sponsorship opportunities, please contact Scott Hoyt at 408.221.8984 or firstname.lastname@example.org.
This Fall - Dates TBA
5th Annual "Wine for a Cure" - Benefit for CFRI
Details coming soon!
If you have any questions about these events, contact CFRI at 650.404.9975 or email@example.com.
For the CF Journey
I have been attending CFRI's camps and retreats for over 15 years. CFRI is one of the only organizations in the country that values the benefits of people with CF gathering together to support each other. Their strict protocols for hygiene and safety regarding cross-infection make this possible.
At Retreat we learn about new treatments, coping skills, and medical aspects of our illness. We enjoy delicious and nutritious meals, exercise activities, and creative art experiences. Most importantly, we explore how CF affects our lives, relationships, and emotional development. At Retreat, I laugh more than any other time during the year, but can also grieve and remember those friends with CF whom I have lost.
I leave Retreat feeling like I have charged my batteries to face the world with hope and confidence. The CFRI community at Retreat are like family. I am extremely grateful to CFRI for sponsoring this event.
Adult with CF