Winning With Cystic Fibrosis Teleclass
Winning with CF: Tools, Tips and Tactics for Raising Healthier Kids™
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Mondays, Feb 8 – March 15, 2010
8:30 –10 pm EST
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In the comfort of your own home |
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This is a six week, 1 1/2 hour teleclass for parents/ guardians of children with cystic fibrosis. The tuition fee is $59.00 per person/ $89 per couple, and limited partial scholarships are available. The fee covers the cost of materials and six class sessions of telephone instruction and interaction. Please note: The long-distance fees from your own telephone carrier are not included in the tuition cost. This course is based on the award-winning Love and Logic book "Parenting Children with Health Issues" by Foster Cline MD and Lisa Greene (included in tuition).
For more information about these classes and to register, click here. Also, check out the Happy Heart Families website for other classes and tips.
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CFRI 23rd National Cystic Fibrosis Family Education Conference
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Jul 30–Aug 1, 2010
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Sofitel San Francisco Bay
Redwood City, CA |
The theme of this conference is:
“Quest for Better Health: Whatever It Takes.”
The conference supports families, adults with CF, health providers and caregivers. Clinicians, researchers and therapists bring their expertise from across the country and abroad. Continuing Education Credits (CEUs) will be offered. Click here for updated information.
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CFRI Annual Teen and Adult Day Retreat
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| August 3 - August 9, 2010 |
Vallombrosa Center
Menlo Park, CA |
For adults and teens 15 years and older with cystic fibrosis, as well as their family members, friends, and health care providers
The theme for this year's retreat is "Retreat 2010 - Must See TV: CF in Hi-Def!" This annual retreat provides a safe and welcoming environment aimed at enhancing positive coping skills, social support and education for people who share common experiences with CF.
Activities promoting health include daily exercise, arts and crafts, rap sessions, and educational workshops with guest speakers. Fun group-bonding activities include a talent show, games, and just hanging out getting to know others.
All people with CF are required to comply with cross-infection behavioral precautions. A medical advisor is available at all times, and volunteers are available to assist with respiratory treatments. Participants with CF must obtain a sputum culture before the start of the retreat.
To download this year's flyer, please click here. For further details, please refer to our 2010 Retreat brochure.
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For information about any of these events, please contact us. |
For the CF Journey
I have been attending CFRI's camps and retreats for over 15 years. CFRI is one of the only organizations in the country that values the benefits of people with CF gathering together to support each other. Their strict protocols for hygiene and safety regarding cross-infection make this possible.
At Retreat we learn about new treatments, coping skills, and medical aspects of our illness. We enjoy delicious and nutritious meals, exercise activities, and creative art experiences. Most importantly, we explore how CF affects our lives, relationships, and emotional development. At Retreat, I laugh more than any other time during the year, but can also grieve and remember those friends with CF whom I have lost.
I leave Retreat feeling like I have charged my batteries to face the world with hope and confidence. The CFRI community at Retreat are like family. I am extremely grateful to CFRI for sponsoring this event.
Anabel Stenzel,
Adult with CF
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