CFRI 25th National Cystic Fibrosis
Family Education Conference
"Facing CF Together...
With Confidence!"
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July 27 - July 29, 2012
Sofitel San Francisco Bay
Redwood City, CA |
CFRI's Annual Education Conference supports families, adults with CF, health providers and caregivers. Clinicians, researchers and therapists bring their expertise from across the country and abroad.
To hear testimonials, click here.
To watch a short video by CFVoice, click here.
For information about our upcoming conference,
sign up to receive CFRInews and updates.
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CFRI's Annual Teen and Adult Retreat
"CFRI RetrEAT: Nourishment for the Soul"
July 29 - August 5, 2012
Vallombrosa Center, Menlo Park, CA
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CFRI's Annual Teen and Adult Retreat provides a safe and welcoming environment aimed at enhancing positive coping skills, social support and education for people who share common experiences with CF. Adults and teens 15 years and older with cystic fibrosis, as well as their family members, friends, and health care providers can register.
Activities promoting health include daily exercise, arts and crafts, rap sessions, and educational workshops with guest speakers. Fun group-bonding activities include a talent show, games, and just hanging out getting to know others.
All people with CF are required to comply with cross-infection behavioral precautions. Participants with CF must obtain a sputum culture before the start of the retreat.
For more information, click here.
To receive updates on Facebook, click here.
Stay tuned for registration details! |
CFRI's 28th Annual Golf Tournament
Monday, August 6, 2012
Pasatiempo Golf Club, Santa Cruz
Our largest sporting event of the year includes 18 holes of golf, wine tasting, silent auction, hors d’oeuvres, and celebration banquet. All proceeds support CFRI’s programs.
For more information, contact Scott Hoyt at 408.221.8984 or dscott.hoyt@gmail.com.
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If you have any questions about these events, contact CFRI at 650.404.9975 or cfri@cfri.org.
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For the CF Journey
I have been attending CFRI's camps and retreats for over 15 years. CFRI is one of the only organizations in the country that values the benefits of people with CF gathering together to support each other. Their strict protocols for hygiene and safety regarding cross-infection make this possible.
At Retreat we learn about new treatments, coping skills, and medical aspects of our illness. We enjoy delicious and nutritious meals, exercise activities, and creative art experiences. Most importantly, we explore how CF affects our lives, relationships, and emotional development. At Retreat, I laugh more than any other time during the year, but can also grieve and remember those friends with CF whom I have lost.
I leave Retreat feeling like I have charged my batteries to face the world with hope and confidence. The CFRI community at Retreat are like family. I am extremely grateful to CFRI for sponsoring this event.
Anabel Stenzel,
Adult with CF
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