CF Community

CFRI receives information about publications, on-line resources, and opportunities for the CF community across the country. All who are involved with cystic fibrosis benefit from growing a strong network of knowledge and support.

Stay tuned for announcements of educational events and activities.


A CF Warrior and Her Mother

Tess and Siri, a compelling team, reflect on their daily battle with cystic fibrosis and their support of an organization that makes a difference. They recognize that CFRI impacts the CF community by funding research, education and awareness, enhancing the quality of life for those living with CF.

To read a letter from Tess and Siri, click here and to view an online video of Siri guiding her teenage daughter, click here.

CFRI recognizes Heroes of Hope recipients

The Heroes of Hope program, sponsored by Genentech, seeks to recognize and salute unique individuals with cystic fibrosis who strive to live full, productive lives and serve as role models to others. Recently, 7 extraordinary Heroes of Hope from around the country, living and succeeding with cystic fibrosis, were honored at this year's CFRI 21st Annual Education Conference. To read about and watch a video from the conference, click here.

CF Courage Dolls

Would you like to connect with other members of the CF community through an art-for-healing project?
You do not have to be an “artist.” You just need the desire to share your heart, make friends and be a little creative.

Click here to learn more about CF Courage Dolls.


Healing Flags for Japan

The project, Healing Flags for Japan, was created to reach out to families affected by cystic fibrosis in Japan. Project creator, Robin Modlin, mother of an adult daughter with CF offered the flags as a gift while on tour with The Power Of Two Movie documentary team in October, 2009.

Members of the CFRI community came to the office in Mountain View, CA to decorate flags. There were 28 flags from members of CF families and friends. The flags shared hope, beauty and support to all people affected by CF in Japan.

Click here to learn more about Healing Flags for Japan.