CREON® CFCareForward Patient Support Program offers nutritional, financial,
and educational support for eligible patients.
Aptalis Pharmaceuticals, Inc.
Zenpep Aptalis Patient Savings Program
Live 2 Thrive Program
Cornerstone DirectCare Services BETHKIS and PERTZYE® (pancrelipase)
Genentech Access Solutions
Pulmozyme® Access Solutions Co-Pay Card Program
Cayston® Access Program
Patient Assistance Now (Spanish Speaking Services)
TOBI® Patient Assistance Program
Vertex GPS: Guidance & Patient Support (Kalydeco®)
Cystic Fibrosis Patient Assistance Foundation
Assistance for affording medications and devices for managing CF
Cystic Fibrosis Services
Additional patient assistance programs for those without insurance coverage
Boomer Esiason Foundation
Links to assistance programs for Tobradex, Creon, Aceon, Estratest HS, Prometrium, EstroGel, Pulmozyme, Advair, and Cipro
Guidance for Californians facing hefty hospital bills
Additional Patient Assistance Programs
Partnership for Prescription Assistance
Patient Advocate Foundation
Database of Patient Assistance Programs
(Search by drug, company or program name)
Mediation and arbitration services for patients with debilitating and life-threatening illnesses.
The Importance of Education
I have been meaning to e-mail you since Claire started Kindergarten to let you know how helpful the CFRI booklet "Cystic Fibrosis in the Classroom" was for us. I gave a copy to her teacher, the school principal, the school nurse, and the district nurse to read before we met to set up her 504 plan. I also used a folder I received from the last CFRI conference by Lisa Yourman on what to put in a 504 plan. It was a great help to have the resources to guide me through the process. Setting up her 504 plan went without a hitch! Claire's teacher, school administrators, and nurses were extraordinarily kind and have been willing to help us in any possible way. Thanks so much for all the great work you do at CFRI. Having resources like this makes such a tremendous difference, and I really appreciate all you do.
Lou Ann Alexander
Parent of Child with CF