Abbott
Androgel® CREON® PROMETRIUM® Patient Assistance Program
http://www.abbottpatientassistancefoundation.org
1-800-256-8918
Eurand Pharmaceutical
Zenpep Points and Assistance Programs
http://www.zenpep.com/site/cfhcp.aspx
1-888-936-7371
Genentech, Inc.
Genentech Access Solutions
http://www.genentechaccesssolutions.com/portal/site/AS/
1-866-4-ACCESS
Pulmozyme Access Solutions Co-Pay Card Program
https://www.activatethecard.com/pulmozyme/appSecWelcomeReq.jsp
1-877-794-8723
Gilead
Cayston Access Program
http://www.gilead.com/us_advancing_access
1-877-7CAYSTON
Nestle Nutrition
http://www.cfri.org/pdf/nestlePatientAssistanceForm.pdf
1-952-848-6112
Novartis Pharmaceuticals
TOBI® Co-pay Assistance Program
http://www.tobitime.com/info/tools/patientassistance.jsp
1-866-598-8624
Other Resources
Cystic Fibrosis Patient Assistance Foundation
Assistance for affording medications and devices for managing CF
http://www.cfpaf.org
Cystic Fibrosis Services
Additional patient assistance programs for those without insurance coverage
https://www.cfservicespharmacy.com/PatientAssistance/
Boomer Esiason Foundation
Links to assistance programs for Tobradex, Creon, Aceon, Estratest HS, Prometrium, EstroGel, Pulmozyme, Advair, and Cipro
http://www.esiason.org/pdf/Cystic.pdf
HospitalBillHelp.org
Guidance for Californians facing hefty hospital bills
http://www.hospitalbillhelp.org
NeedyMeds.org
Additional Patient Assistance Programs
http://www.needymeds.org
Partnership for Prescription Assistance
Database of Patient Assistance Programs
(Search by drug, company or program name)
http://www.pparx.org/prescription_assistance_programs/list_of_participating_programs
Patient Advocate Foundation
Mediation and arbitration services for patients with debilitating and life-threatening illnesses.
http://www.patientadvocate.org/
RXAssist Patient Assistance Program Center
Database of Patient Assistance Programs
(Search by drug, company or program name)
http://www.rxassist.org/patients/default.cfm
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The Importance of Education
I have been meaning to e-mail you since Claire started Kindergarten to let you know how helpful the CFRI booklet "Cystic Fibrosis in the Classroom" was for us. I gave a copy to her teacher, the school principal, the school nurse, and the district nurse to read before we met to set up her 504 plan. I also used a folder I received from the last CFRI conference by Lisa Yourman on what to put in a 504 plan. It was a great help to have the resources to guide me through the process. Setting up her 504 plan went without a hitch! Claire's teacher, school administrators, and nurses were extraordinarily kind and have been willing to help us in any possible way. Thanks so much for all the great work you do at CFRI. Having resources like this makes such a tremendous difference, and I really appreciate all you do.
Lou Ann Alexander
Parent of Child with CF
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