Events

CFRI holds a variety of educational and fundraising events to provide support to the CF community. Read on for details about upcoming and past events and fundraisers.

Annual CFRI Education Conference
Annual CFRI Retreat
Fundraisers: Golf, Mother's Day Tea
DVDs, Audio CDs and Videotapes of Events and Conferences - Updated 12/2004

Cystic Fibrosis Research, Inc.
19th Annual Educational Conference

The Cystic Fibrosis Journey:
All Ages, All Stages
Among the Guest Speakers:

Foster Cline, MD, “Be The Best Parent You Can Be”
David Orenstein, MD, "Clinical Treatments, What's New, What's Next?"
Susan Roos, PhD, “Handling Guilt and Sorrow in the CF Family”
Hernando Garzon, MD, “Disaster Preparedness, Emergencies and CF”
Noreen Henig, MD, "Transplantation; When is the Right Time?"
Carolyn Lutzko, PhD, "Stem Cell and Cystic Fibrosis"
Marybeth Howard, PhD. and Jonathan Widdicombe, PhD. “Your CF Dollars at Work”

Early registration fee (before July 1, 2006): $135
Registration fee (July 1 to August 3, 2006): $150

In collaboration with USACFA
United States Adult Cystic Fibrosis Association

August 4-6, 2006
Sofitel San Francisco Bay
Redwood City, California

Cystic Fibrosis Research, Inc.
650-404-9975
cfri@cfri.org
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CFRI TEEN & ADULT DAY RETREAT

August 6 – August 11, 2006

Located at Vallombrosa Center
in Menlo Park, California

Theme: Trick Or Re-Treat!

Meet Some Great Friends!
Feel Like You’re Not Alone!
Learn more about taking care of your CF!

Who Can Come: Teens, 15 -18 years and adults with cystic fibrosis, their family members and health care providers

Purpose of the Day Retreat: The retreat provides a safe and welcoming environment aimed at enhancing positive coping skills, social support and education for people who share common experiences with CF.

What We Do: Activities that promote health include daily exercise, arts and crafts, rap sessions, and educational workshops with guest speakers. Fun group-bonding activities include a talent show, games, and just hanging out getting to know others.

Guest Speakers Include: Christine Evans, PhD, Kristin Shelton, RRT and Andrea Throndson

Cost: $65 per person for the entire week. Daily fees are $15 per day for visitors, or $10 per meal for those who drop in for a meal only. Overnight accommodations and transportation are the responsibilities of participants. Scholarships are available for those unable to pay fees.

Safety: All people with CF are required to comply with cross infection behavioral precautions. A medical advisor is available at all times, and volunteers are available to assist with respiratory treatments. Participants with CF must obtain a sputum culture before the start of the retreat. People who have ever cultured Burkholderia cepacia, cultured Methicillin-resistant Staphylococcus aureus (MRSA) within the past 2 years, or are currently resistant to all antibiotics will not be allowed to attend the retreat.

We’d Love To See You There!

For An Application, Please Contact:

Cystic Fibrosis Research, Inc.
2672 Bayshore Parkway, Suite 520
Mountain View, CA 94043
Phone: (650) 404-9975/ Fax: (650) 404-9981
cfri@cfri.org

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Fundraisers

Mother's Day Tea
CFRI's largest fundraiser, the Mother's Day Tea. Remember that we are always looking for new tea senders for future Mother's Day Teas. Learn how you can contribute in a simple yet significant way to CFRI's fundraising efforts.
Also! Read the 2006 Tea Times!

Special Gifts Campaign
End of the year Holiday Giving. Volunteers are needed to help with our upcoming Special Gifts Campaign. Please call the CFRI office (650-404-9975) to schedule some time for this important fund-raising campaign.

Vehicle Donations
Donate Your Car, Truck, Boat or RV. Your tax-deductible vehicle donation funds lifesaving research and educational programs that prolong the lives of children and adults with CF and move closer to our goal of ending cystic fibrosis suffering.

It’s EASY: We’ll have the vehicle picked up ….and send you a receipt. (We ask for running California vehicles only)

For more information E-mail Barbara Peterson at jubilee@tdl.com

DVDs, Audio CDs and Videotapes of Events and Conferences

All tapes are $6.00 (unless otherwise noted). This includes shipping and handling, and is payable in advance. Tapes are mailed standard mail delivery. Please allow 4-6 weeks.

Mail your check payable to CFRI. Be sure you note which tapes you want and the quantity. Include your mailing address. You may also print and use the following order form for the 2005 conference.

Other conference videos are available here

DISCLAIMER: All information provided on this site is general in nature. Do not rely upon any of the information for medical diagnosis or treatment. Please consult your primary health care provider if you have questions or concerns about any medical issues or conditions. Appearance of link sites and sponsors on the CFRI or related web pages does not imply endorsement by Cystic Fibrosis Research Inc. CFRI and the authors of the information contained here cannot be held responsible for any damage resulting from use of any information that is found on this web site.